Research update: support for people living with LBD and family carers

Study Title: The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners We have received an update from Newcastle University about a study that was supported by The Lewy Body Society, which we wanted to share with our supporters. Background Clinicians and people with lived […]

Lewy Body UK Conference

We were delighted to work with a team of academics – Rimona Weil (UCL), Claire O’Callaghan (The University of Sydney) & John-Paul Taylor (Newcastle University) – to host the Lewy Body UK 2021 Scientific Conference on 15th June. With 15 speakers in total, some from as far away as Australia and the USA, it was […]

New research may help diagnosis and treatment of Lewy body dementia 

Associate Professor Jay Amin spoke about his research on a Zoom webinar on Tuesday 1st December. The recording of the event is available on our YouTube channel here.  Two newly published research studies, led by Dr Jay Amin from the University of Southampton and supported by the Lewy Body Society and Alzheimer’s Research UK, have […]

COVID-19: The Challenges for People living with Dementia

By Shivani Patel and Jiabin Tang To download this article as a pdf please click here. Introduction Recently, all our lives have been turned upside-down by the Coronavirus (COVID-19) pandemic. In this article we will describe the impact of the pandemic and the resultant ‘lockdown’ on people living with Lewy body dementia, and how the […]

A new approach to Lewy body dementia support

 In this article, researcher Alison Killen describes a new support group she has established for people living with Lewy body dementia and their families, and why she wants these groups to be available in all areas. I work as a researcher at Newcastle University and I am also training to be a health psychologist. My […]

A PET-MR study of occipital connectivity in DLB

2019/20 Grant awarded to Professor John-Paul Taylor, Deputy Dementia Theme lead for the NIHR Newcastle Biomedical Research Centre, Translational and Clinical Research Institute, Newcastle University Aim of the study Using advanced imaging on a PET-MR scanner, this study will examine how the visual part of the brain processes signals, so that we can better understand […]

First ever Consultant Admiral Nurse for Lewy body dementia

The Lewy Body Society is delighted to announce the appointment of Rachel Thompson as the first ever Consultant Admiral Nurse for Lewy body dementia. The new role represents the next stage in the charity’s partnership with Dementia UK, which runs the Admiral Nurse service and helpline.  Rachel will continue to be hosted by Dementia UK, […]