Each case of Lewy body dementia is as individual as the person living with it. The symptoms are complex and not everyone will experience all of the symptoms we have listed or develop them at the same time.
Please note: this should not be a substitute for medical advice. The Lewy body Society urges anyone concerned about Lewy body dementia to contact their doctor
A GP should refer on to a memory or dementia service and/or a movement disorder/Parkinson’s service or a neurologist. This may depend on which symptoms appear first.
The person’s physical health will be assessed and they and a family member, if possible, will be asked about symptoms such as:
There may blood tests to rule out other conditions and brain scans to detect signs of dementia.
Careful clinical evaluation of symptoms forms the basis for making a reasonably confident diagnosis. However, Lewy body dementia can only be confirmed after death.
If you, or someone you know, have any of the following combinations of symptoms, you may have Lewy body dementia and should seek medical advice:
Supportive symptoms: These may assist in a diagnosis of DLB but are not conclusive.
See Symptoms and Treatments FAQ for more details.
A diagnosis of Lewy body dementia is less likely if the person has had a stroke or other illness which may have affected motor or mental ability.
Progressive mental decline that interferes with normal daily activities. Significant memory loss may not develop until later. There may also be problems with attention, problem solving and spatial awareness.
The symptoms include:
Physical symptoms can include (although will not be experienced by everyone):
Psychological symptoms can include (although will not be experienced by everyone):
No, not present but the Lewy Body Society is working tirelessly towards better, awareness, diagnosis and treatment until a cure is discovered.
We have a library of downloadable leaflets with expert advice to help you understand all aspects of life with Lewy body dementia