Our contact details:
The Lewy body Society
Unity House, Westwood Park, Wigan, WN3 4HE
Date of Privacy Notice: May 2022 | Review Date: May 2023
Under the UK General Data Protection Regulation (UK-GDPR), The Lewy body Society is obliged to inform individuals how we use their personal data and why. This privacy notice outlines what data we collect from you, why we need it and how it is processed when you take part in a fundraising event or donate to the charity through the various platforms we use. You will also find details of your rights as individuals under the UK-GDPR.
This privacy notice is aimed at individuals, groups and organisations that support The Lewy body Society by raising funds and awareness via donations, sponsorship, or marketing.
The Lewy body Society is the Data Controller for the personal information that we process about you; this means that we are responsible for the data we collect and make decisions on how your data is processed.
Although the charity is not required to appoint a Data Protection Officer, we have assigned a responsible person to act as a point of reference for data protection related queries. Any questions regarding the processing of your personal data should be directed to our Data Protection Representative (DPR):
N: Jacqueline Cannon | T: 01942 914 000 | firstname.lastname@example.org
The type of personal data we collect & why?
Depending upon your method of supporting our charity, The Lewy body Society will collect some or all of the following categories of personal data from you when you choose to donate or fundraise for us:
The Lewy body Society do not process any special categories of personal data for donors and fundraisers.
How do we get your information?
Most of the personal data that we process is provided directly by you when you register to support the charity, donate, or purchase an item from our online store. We may also receive basic personal data indirectly from our fundraising partners when you choose to support the charity through them.
Our lawful bases and purposes for processing your personal data
Under the UK-GDPR, The Lewy body Society must have a lawful bases to process your personal data. We currently rely on the following lawful bases to process the personal data of donors and fundraisers:
Where we have asked for your consent to process personal data, you have the right to withdraw this consent should you change your mind at any point by emailing: email@example.com. You can also unsubscribe from our newsletter by clicking the ‘unsubscribe’ link at the bottom of our emails.
Who we share your data with?
The Lewy body Society utilise third party providers to process the different types of support and donations that we receive whether you are making a direct donation or contributing to a sponsored fundraising event. The charity currently uses the following third parties for fundraising purposes:
The Lewy body Society do not receive any financial information when you donate using the platforms listed above. In most cases, you will input the information directly into the system and the charity will receive the payment amount and your name as reference only along with your postal address if you purchase an item.
Some of the donation platforms utilised by the charity offer donors the opportunity to partake in the ‘Gift Aid’ scheme which is a government initiative to boost your donation amount; the charity can claim an extra 25p per £1 donated. It is a legal obligation to provide your name, address and postcode so that the Government can process Gift Aid.
Most online platforms such as ‘PayPal’ and ‘Just Giving’ will offer you the opportunity to register for ‘Gift Aid’ at the time of donating. If you are donating using one of our sponsorship forms, you will need to complete your details on the form and tick the box to agree to us providing said details to HMRC as part of the Gift Aid process. The charities accountancy provider processes all gift aid returns on our behalf.
Any third parties used by the charity are compliance checked to ensure that the company processing adhere to the same high standards and security levels in place at The Lewy body Society. The charity only processes your personal data with third parties if it is necessary for our operations.
As part of our fundraising efforts, The Lewy body Society may share your name, images, and support messages in the public domain with your full and explicit consent. Popular methods include:
The Lewy body Society will clearly explain how your personal data will be used at the time of obtaining your consent.
Transferring data internationally
The Lewy body Society do not routinely transfer your data outside of the United Kingdom (UK) unless the law or our policies allow us to do so. Sometimes our third-party providers will store information on servers outside of the UK, where this is apparent, we will ensure that providers do so in line with data protection legislation.
How we store your personal information
Any personal data provided to the charity as part of the donation and fundraising process is stored securely on our filing system. Information held electronically is password protected and only accessible to our staff on a need-to-know basis. Similarly, physical documentation is securely stored in a locked cabinet with strict access controls in place.
The Lewy body Society have a retention schedule in place to ensure your data is only kept if it is necessary to fulfil the purpose it was collected for.
Your data protection rights
Under data protection law, you have the following rights in certain circumstances:
You are not required to pay any charge for exercising your rights. If you make a request, we have one calendar month to respond to you.
If you would like to exercise any of your rights, please contact us.
If you have any concerns about our use of your personal information, it would be very much appreciated if you could contact us in the first instance to allow us an opportunity to resolve your complaint.
You can also complain to the ICO if you are unhappy with how we have used your data.
The ICO’s address:
Information Commissioner’s Office
Helpline number: 0303 123 1113
ICO website: https://www.ico.org.uk