Caring for someone with Lewy body dementia can be challenging and stressful. You may feel overwhelmed by the changes in your loved one’s personality and behaviour. You may also face practical difficulties, such as managing medications, arranging appointments and finding suitable care services.
But you are not alone. There is information and support available to help you cope with Lewy body dementia and provide the best possible care for your loved one.
Dementia can affect how someone sees and experiences the world due to physical changes in the brain. This may lead to the person having difficulty recognising and managing their emotions due to low mood, apathy or frustration.
Understanding that changes in emotions are part of the person’s dementia can be an important first step in helping you understand and respond to them sensitively.
There are practical steps you can take to help the person feel more at ease and cope with some of the more challenging symptoms:
It is important to take care of yourself as well, when you are a carer. Easier said than done, we know.
If you would like to talk to a specialist dementia nurse you can call the Admiral Nurse Dementia Helpline on 0800 888 6678 (Monday-Friday 9am-9pm, Saturday and Sunday 9am-5pm) or email email@example.com
Or to book a phone or video appointment, please visit www.dementiauk.org/book-an-appointment
We are able to provide funding towards this important service with the generosity of our fantastic supporters. Thank you.
We have a library of downloadable leaflets with expert advice to help you understand all aspects of life with Lewy body dementia