Half of all people with Lewy body dementia are misdiagnosed with another condition instead. We want that to stop – right now. Better understanding will lead to better care and better treatments. Better for everyone.
The Lewy body Society was founded in 2006 by former barrister Ashley Bayston, now our chair. While caring for her recently diagnosed mum, she was shocked to discover how little information about Lewy body dementia was available.
When it became clear no-one was trying to raise awareness of this disease with such unique symptoms and so few treatment options, Ashley began contacting experts in the field herself.
We launched as an official charity in June 2006.