About us

The Lewy Body Society, established in June 2006 in the UK, was the first charity in Europe exclusively concerned with Lewy body dementia. Our mission is to fund clinical research to improve the diagnosis and treatment of the disease. We also raise awareness of Lewy body dementia among the general public and those in the medical profession and decision making positions, and we provide information resources for patients and carers.
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Who’s who

President
Miss June Brown MBE

“I became Patron of the Lewy Body Society because my husband, Robert Arnold, died of Lewy body dementia. The charity was founded so that more people become aware of this disease and how different it is from Alzheimer’s and indeed, Parkinson’s disease with which Lewy Body sufferers often share symptoms.

It is extremely important that the cause of dementia is correctly diagnosed as different diseases require different treatment. The wrong drugs can be potentially very dangerous.

I think the Lewy Body Society is so important because it is the only organisation in all of Europe dedicated solely to this disease, providing information and sponsoring research. It is imperative that more research is done in the hope of prevention, better treatment, and ultimately, a cure.”

June Brown MBE
President

Professor Ian McKeith

Chair

Ashley Bayston

CEO

Jacqueline Cannon

Ambassadors

Conor McGinn MP
Ken Clasper
Les Magee

Trustees

Ashley Bayston
John Allan
Paul Moynagh
Dr Lynne Corner
Sandra McDonald

If you are holding an event or conference and would like a speaker to provide an expert perspective on Lewy body dementia, please contact us to discuss your requirements. 
Specialist Advisory Committee

The Specialist Advisory Committee (SAC) is a multi-disciplinary team of health and social care professionals who are responsible for reviewing all grant applications and advise LBS on its workplan, adding credibility to the charity and providing expert input on specific pieces of work (e.g. content of information pack). Current membership is:

Prof Ian McKeith – President LBS (Ex officio)
Dr Jill Rasmussen – RCGP Clinical Representative for Dementia (SAC Chair)
Prof. Alistair Burns – National Clinical Director for Dementia and Deputy Dean, Institute of Brain, Behaviour and Mental Health, University of Manchester
Prof. Peter Connelly – Consultant Old Age Psychiatrist, Murray Royal Hospital
Baroness Sally Greengross – Chair, All Party Parliamentary Group on Dementia
Clare Johnson – Specialist Occupational Therapist, London Road Community Hospital, Derby
Dr Marzena Kurzawa-Akanbi – Senior Research Associate, Institute of Genetic Medicine, Newcastle University
Fiona Lindop – Specialist Physiotherapist, London Road Community Hospital, Derby
Prof. John O’Brien – Foundation Professor of Old Age Psychiatry, Department of Psychiatry, University of Cambridge
Prof. John-Paul Taylor – Welcome Trust Intermediate Clinical Fellow, Institute for Ageing and Health and Honorary Consultant in Old Age Psychiatry, Northumberland, Tyne and Wear NHS Trust
Rachel Thompson – Dementia Project Lead, Royal College of Nursing
Dr Zuzana Walker – Reader in Psychiatry of the Elderly, University College London and St Margaret’s Hospital, Epping

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