The Lewy Body Society, established in June 2006 in the UK, was the first charity in Europe exclusively concerned with Lewy body dementia. Our mission is to fund clinical research to improve the diagnosis and treatment of the disease. We also raise awareness of Lewy body dementia among the general public and those in the medical profession and decision making positions, and we provide information resources for patients and carers.
“I became Patron of the Lewy Body Society because my husband, Robert Arnold, died of Lewy body dementia. The charity was founded so that more people become aware of this disease and how different it is from Alzheimer’s and indeed, Parkinson’s disease with which Lewy Body sufferers often share symptoms.
It is extremely important that the cause of dementia is correctly diagnosed as different diseases require different treatment. The wrong drugs can be potentially very dangerous.
I think the Lewy Body Society is so important because it is the only organisation in all of Europe dedicated solely to this disease, providing information and sponsoring research. It is imperative that more research is done in the hope of prevention, better treatment, and ultimately, a cure.”
June Brown MBE
Conor McGinn MP
Dr Lynne Corner
If you are holding an event or conference and would like a speaker to provide an expert perspective on Lewy body dementia, please contact us to discuss your requirements.
Specialist Advisory Committee
The Specialist Advisory Committee (SAC) is a multi-disciplinary team of health and social care professionals who are responsible for reviewing all grant applications and advise LBS on its workplan, adding credibility to the charity and providing expert input on specific pieces of work. Current membership is:
Dr Jill Rasmussen – RCGP Clinical Representative for Dementia (SAC Chair)
Prof. Ian McKeith – Professor of Old Age Psychiatry, Newcastle University, Newcastle upon Tyne
Prof. Alistair Burns – National Clinical Director for Dementia and Deputy Dean, Institute of Brain, Behaviour and Mental Health, University of Manchester
Prof. Peter Connelly – Consultant Old Age Psychiatrist, Murray Royal Hospital
Baroness Sally Greengross – Chair, All Party Parliamentary Group on Dementia
Clare Johnson – Specialist Occupational Therapist, London Road Community Hospital, Derby
Dr Marzena Kurzawa-Akanbi – Senior Research Associate, Institute of Genetic Medicine, Newcastle University
Fiona Lindop – Specialist Physiotherapist, London Road Community Hospital, Derby
Prof. John O’Brien – Foundation Professor of Old Age Psychiatry, Department of Psychiatry, University of Cambridge
Dr Zuzana Walker – Reader in Psychiatry of the Elderly, University College London and St Margaret’s Hospital
Dr Karen Harrison Dening, Head of Research & Publications, Admiral Nursing, Dementia UK
Prof. Paul Francis, Professor of Neurochemistry, University of Exeter and King’s College London
Prof. John-Paul Taylor – Professor of Translational Dementia Research, Newcastle University
Rachel Thompson – Dementia Project Lead, Royal College of Nursing
Prof. Alistair Burns – National Clinical Director for Dementia and Older People’s Mental Health, NHS England/Improvement. Professor of Old Age Psychiatry at the University of Manchester