The Lewy Body Society, established in June 2006 in the UK was the first charity in Europe exclusively concerned with dementia with Lewy bodies. The charity’s mission is to raise awareness of DLB for the general public and educate those in the medical profession and decision making positions about all aspects of the disease and to support research into the disease. We have produced a series of vodcasts and a DVD about DLB.
“I became Patron of the Lewy Body Society because my husband, Robert Arnold, died of Lewy body dementia. The charity was founded so that more people become aware of this disease and how different it is from Alzheimer’s and indeed, Parkinson’s disease with which Lewy Body sufferers often share symptoms.
It is extremely important that the cause of dementia is correctly diagnosed as different diseases require different treatment. The wrong drugs can be potentially very dangerous.
I think the Lewy Body Society is so important because it is the only organisation in all of Europe dedicated solely to this disease, providing information and sponsoring research. It is imperative that more research is done in the hope of prevention, better treatment, and ultimately, a cure.”
June Brown OBE
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Conor McGinn MP
Dr Lynne Corner
Dr Liz Bewley
Specialist Advisory Committee
The Specialist Advisory Committee (SAC) is a multi-disciplinary team of health and social care professionals who are responsible for reviewing all grant applications and advise LBS on its workplan, adding credibility to the charity and providing expert input on specific pieces of work (e.g. content of information pack). Current membership:
Dr Jill Rasmussen – Clinical Representative for Dementia, Royal College of GPs (SAC Chair)
Prof. Alistair Burns – National Clinical Director for Dementia and Deputy Dean, Institute of Brain, Behaviour and Mental Health, University of Manchester
Prof. Ian McKeith – Professor of Old Age Psychiatry, Newcastle University
Prof. Peter Connelly – Consultant Old Age Psychiatrist, Murray Royal Hospital
Prof. Paul Francis, Professor of Neurochemistry, University of Exeter and Kings College London
Baroness Sally Greengross – Chair, All Party Parliamentary Group on Dementia
Clare Johnson – Specialist Occupational Therapist, London Road Community Hospital, Derby
Fiona Lindop – Specialist Physiotherapist, London Road Community Hospital, Derby
Prof. John O’Brien – Foundation Professor of Old Age Psychiatry, Department of Psychiatry, University of Cambridge
Dr John-Paul Taylor – Professor of Translational Dementia Research with the Institute of Translational and Clinical Research at Newcastle University and Honorary Consultant in Old Age Psychiatry with the Cumbria, Northumberland, Tyne and Wear (NTW) NHS Trust
Rachel Thompson – Consultant Admiral Nurse for Lewy body dementia, Dementia UK and The Lewy Body Society
Dr Zuzana Walker – Professor of Psychiatry of the Elderly University College London and Essex Partnership University NHS Foundation Trust.
Dr Marzena Kurzawa-Akanbi – Research Associate, Institute of Neuroscience, Newcastle University