Living with Lewy

Lewy body dementia is a complex and frequently misdiagnosed disease that affects memory, thinking, movement, sleep and behaviour. No one should face it alone

Welcome to Lewy Body Society

The community for people with “The most common type of dementia you have never heard of”, their families and carers, health care professionals and researchers.

We are the only charity in the UK – and the first in Europe – dedicated exclusively to Lewy body dementia.

Lewy body dementia is the second most common type of neurodegenerative dementia in older people. At least 10-15% of all people who live with dementia have Lewy body dementia.

We campaign to raise awareness of Lewy body dementia in those who need to understand the disease and its impact – people living with Lewy body dementia and those who can make a difference to their futures.

We fundraise to research new treatments and potential cures.

Living With Lewy: Podcast

Until the 2014 death of actor Robin Williams, not many people had heard of Lewy Body Dementia, even though it comprises an estimated 15% of all dementia cases. Aimed to raise awareness of the condition, Living with Lewy is a two-episode bespoke podcast produced by ITN Business for the Lewy Body Society,

How we support research and how I can get involved in research

It is Lewy body Society’s mission to fund clinical research, understand the causes of Lewy body dementia, and advance its diagnosis and treatment. We have funded ground-breaking projects and worked with top UK universities since 2007.

Together, we can do it

Help us support more people living with Lewy body dementia and lead research for better diagnosis and treatment

Our Latest News

LBS Dotty Days 2024

LBS Dotty Days 2024

Have yourself a ‘Dotty Day’ to raise awareness of Lewy body dementia This week sees us celebrate ‘Dotty Days’ – Lewy Body Dementia Awareness Week

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In Memory Add your loved one to our In Memoriam list