Welcome to the Lewy Body Society

The Lewy Body Society is a charity registered in England and Wales (number 1114579) and in Scotland (SC047044) whose mission is to fund research into Lewy body dementia and to raise awareness of the disease. DLB is the second most common type of neurodegenerative dementia in older people after Alzheimer’s, accounting for approximately 15-20% of all people living with dementia. We also hope to provide a community focus for those who live with dementia with Lewy bodies (DLB) along with their carers and families. The website provides information to help those who need to understand the disease and its impact.




0131 473 2385



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Frequently asked questions

Dementia with Lewy bodies (DLB) is the second most common cause of dementia in older people, affecting approximately 130,000 individuals in the UK together with their carers and relatives. It is sometimes also referred to as Lewy body disease or Lewy body dementia.
If you would like to take part in a research study through ‘Join Dementia Research’ then click the button.

Latest tweets

Lewy Body Society @lbsorg RT @PWSWills: Mark completed the ride hope you saw him and have been inspired to look & help @lbsorg #BforBWigan #Believe https://t.co/KQc5 5 hours ago
Lewy Body Society @lbsorg Well done and thank you for promoting #Awareness https://t.co/noP09ELTMH 5 hours ago
Lewy Body Society @lbsorg Good luck for today’s bike race. https://t.co/T9rk9joh1r 11 hours ago
Lewy Body Society @lbsorg RT @Being_Patient_: While #Alzheimer's is the most common form of #dementia, others live with #LBD. Jamie Scudder was a #caregiver for her… 2 days ago