In Lewy body dementia, problems such as hallucinations and delusions often arise. In some cases, these may present as ‘delusions of misidentification’, of which Capgras syndrome is one type. In Capgras syndrome, a person believes that a friend, spouse, parent, …
Team at RAF Akrotiri in Cyprus raise over £1000 after cycling, walking and running 2079 miles
Earlier this year we were contacted by a member of the Team RLS at RAF Akrotiri in Cyprus. They set themselves the challenge of running, walking and cycling the distance from RAF Brize Norton in Oxfordshire to RAF Akrotiri which …
Thank you to Palo Alto Networks and Exclusive Networks for raising over £5000 towards Lewy body research
On Saturday 25th June, a team from Palo Alto Networks, a leading global cyber security company, completed their Hikers versus Bikers charity challenge, supported by their sponsor, Exclusive Networks. Nineteen walkers completed the Yorkshire Three Peaks, a 26 mile walk …
Research summary report: Multimodal Imaging in Lewy Body Disorders
We have received the following report from the University of Cambridge, which summarises the progress made following the award of a Lewy Body Society grant in 2015. There are some very positive outcomes, such as an improved understanding of imaging …
Research methodology update: Analysing the personal experience of couples living and dying with Lewy body dementia
This information about research methodology was shared at the International Mental Health Nursing Research Conference by Allison Bentley, Lead Research Nurse for Lewy body dementia at Cambridgeshire and Peterborough NHS Foundation Trust. This is part of a study funded by …
Research update: support for people living with LBD and family carers
Study Title: The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners We have received an update from Newcastle University about a study that was supported by The Lewy Body …
Lewy Body UK Conference
We were delighted to work with a team of academics – Rimona Weil (UCL), Claire O’Callaghan (The University of Sydney) & John-Paul Taylor (Newcastle University) – to host the Lewy Body UK 2021 Scientific Conference on 15th June. With 15 …
Hallucinations – new leaflet and webinar on 5th July
Hallucinations and changes in visual perception can be among the most challenging symptoms of Lewy body dementia, both for the person living with the disease and their family/caregivers. That’s why we’ve produced a new resource with information and tips about …
My father and Lewy body dementia – an essay by Jane Sigaloff
As Lewy Body Dementia Awareness Week 2021 gets underway, we are delighted to publish a special essay by Jane Sigaloff. Jane is a published author and in this powerful piece she describes the range of emotions she experienced during her …