Applying for research funding from The Lewy Body Society


We are the only charity dedicated solely to dementia with Lewy bodies (DLB) in the UK. Through our application and review process we aim to fund the highest quality research so that we can make a real difference to the …

Missing : 67-year-old Gerry Turner


The wife of a missing man, is raising awareness of the heartbreaking symptoms of Lewy body dementia. It has been three weeks since Jane Turner saw her husband Gerry. The article from can be accessed via this link:

RVT-101 for Dementia with Lewy Bodies (HEADWAY-DLB)


Axovant Sciences, have announced their decision to discontinue the HEADWAY-DLB study. The Lewy Body Society is obviously very disappointed at this news and especially for those of our supporters who took part in the trials. The project tested the efficacy …

Dementia with Lewy bodies: unique genetic profile identified


Dementia with Lewy bodies has a unique genetic profile, distinct from those of Alzheimer’s disease or Parkinson’s disease, according to the first large-scale genetic study of this common type of dementia. The genome-wide association study, conducted by a UCL-led collaboration …

New Years Day Dip at Paighton Beach Devon


Massive congratulations and thank you to Phillipa Jones, Carol Satterly and everyone who took part in the New Years Day dipon Paignton Beach. Thank you also to the friends who went along to support them. You can sponsor the team …

AMRC Membership


The Lewy Body Society is delighted to announce that it has been accepted as a member of the AMRC (Association of Medical Research Charities). This is a major milestone for us and we are very excited about the future. Thank …

The Dementia 2020 Citizens’ Panel for England


The Dementia 2020 Citizens’ Panel for England This post is on behalf of ORS – Opinion Research Services Have you, or has somebody close to you, been diagnosed with dementia in the last two years? If so, we’d really like …