Grant Round 2022

We are the only charity dedicated solely to Lewy body dementia in the UK. Through our application and review process we aim to fund the highest quality research so that we can make a real difference to the lives of people with LBD. We are pleased to announce that the call for applications to our […]
COVID-19 Advice Sheet for people living with LBD and their families and carers

The current coronavirus or Covid-19 pandemic is an unsettling and anxious time for everyone. This can be especially so if you have, or care for, someone with a condition such as Lewy body dementia which may increase vulnerability to the effects of the virus. Newcastle University has produced an advice sheet in collaboration with the […]
Coronavirus (COVID-19)

This is a time of concern for anyone with existing health conditions and we urge you to check and follow the latest NHS guidance. The society is here to take your calls: 01942 914000 & answer your emails: info@lewybody.org on Lewy body dementia. We also continue to work in partnership wth the Dementia UK helpline […]
Chris Leek appointed as an Ambassador of The Lewy Body Society

Chris Leek , has joined Ken Clasper, Conor McGinn MP and Les Magee to become our fourth Ambassador. We are delighted that he has agreed to take on the role. Chris has first-hand experience of Lewy body dementia as his father is living with Lewy body dementia. Chris Leek completed the Enduroman Arch 2 Arc […]
New clinical trial seeks participants

One of the Lewy Body Society’s main aims is to support research into Lewy body dementia, to help improve diagnosis and treatment of the disease in future. A new clinical trial started in 2018 at a number of different hospitals and research centres across the UK. If you or someone you know would like to […]
Invitation to research: Dementia with Lewy Bodies

We would like to invite you to take part in a new research study hosted by a research group based at Cardiff University. Since 2004 we have been interviewing people and collecting blood samples to try to understand more about how certain genes affect the likelihood of developing dementia. So far over 5000 people have […]
Improving diagnosis and management in dementia with Lewy bodies using the CPFT Research Database (CRATE)

Improving diagnosis and management in dementia with Lewy bodies using the CPFT Research Database (CRATE) We would like to draw your attention to the following study, funded by the Alzheimer’s Society, which proposes to use anonymised clinical data from people with dementia who were seen within Cambridgeshire and Peterborough NHS Foundation Trust (CPFT) from 2005 […]
East Anglia Research

Are you or someone you care for living in East Anglia with a diagnosis of Lewy body dementia? Living with Lewy body dementia: Stories of Everyday Experience is a research study aimed at finding out your experiences of day to day living with Lewy body, so it can inform future nursing practices and care. Taking […]
University of Cambridge

Our first grant for 2018/19 is for a project which aims to identify ‘repurposed’ treatments for Lewy body dementia Project name Drug Repurposing for Dementia with Lewy Bodies Project team Led by Professor John T O’Brien, Department of Psychiatry, University of Cambridge (read Prof O’Brien’s biography here) Aim of the study To identify any existing drugs, […]
Patient attitudes to genome editing for prevention of heritable disorders: Social and Ethical implications

You are encouraged to take part in a research study conducted by University College London (UCL). The study aims to explore the opinions and knowledge of those in heritable disease communities regarding genome editing and its applications. This research is in the form of an online survey. The survey will explore the different aspects of […]