Patient attitudes to genome editing for prevention of heritable disorders: Social and Ethical implications

You are encouraged to take part in a research study conducted by University College London (UCL). The study aims to explore the opinions and knowledge of those in heritable disease communities regarding genome editing and its applications. This research is in the form of an online survey. The survey will explore the different aspects of the technology itself, as well as its applications in a medical setting for the treatment of heritable disease. The study will also explore the attitudes of people with experience of heritable diseases towards the introduction of genome editing in embryos for correction of mutations.

The study is looking for a variety of people within these communities, those affected and also their family members. Additionally, anyone who is involved in the community but does not have a family member affected is also welcome to join.

You can find the survey via the following link:

The survey can be completed via the weblink on smart phones, on laptop or desktop and should not take more than 15 minutes to complete.

The study hopes to broaden the discussion to allow all disease communities to be heard. Your time and input are truly appreciated.

Contact: Issi Platt by email: 

or Mobile number: (+44)7752086432