SAVE THE DATE – A Scarf For Lewy – Belfast

SAVE THE DATE – On Tuesday 17th October 2023 we are holding an event with a difference… Following the success of ‘A Scarf For Lewy’ last year at the Royal Albert Hall we are taking the event to the Waterfront Hall in Belfast, more details to follow.

Climbing Mount Kilamanjaro

A huge thank you and well done to Paul Craven and his sister Cyn who completed their climb of Kilimanjaro on 13 February in memory in Cyn’s husband Patrice who lived with Lewy body dementia. Cyn at the age of 74 made it to base camp and despite gale force winds with a wind chill […]

Miss June Brown OBE

The Lewy Body Society is very sad to hear that our Patron Miss June Brown OBE has died and we would like to offer our deepest condolences to her family and friends for their loss. The society has been honoured to have Miss June Brown OBE as its Patron for its 16 years and we […]

Grant Round 2022

We are the only charity dedicated solely to Lewy body dementia in the UK. Through our application and review process we aim to fund the highest quality research so that we can make a real difference to the lives of people with LBD. We are pleased to announce that the call for applications to our […]

COVID-19 Advice Sheet for people living with LBD and their families and carers

The current coronavirus or Covid-19 pandemic is an unsettling and anxious time for everyone. This can be especially so if you have, or care for, someone with a condition such as Lewy body dementia which may increase vulnerability to the effects of the virus. Newcastle University has produced an advice sheet in collaboration with the […]

Coronavirus (COVID-19)

This is a time of concern for anyone with existing health conditions and we urge you to check and follow the latest NHS guidance. The society is here to take your calls: 01942 914000 & answer your emails: on Lewy body dementia. We also continue to work in partnership wth the Dementia UK helpline […]

Chris Leek appointed as an Ambassador of The Lewy Body Society

Chris Leek , has joined Ken Clasper, Conor McGinn MP and Les Magee to become our fourth Ambassador. We are delighted that he has agreed to take on the role. Chris has first-hand experience of Lewy body dementia as his father is living with Lewy body dementia. Chris Leek completed the Enduroman Arch 2 Arc […]

New clinical trial seeks participants

Scientific Research Banner

One of the Lewy Body Society’s main aims is to support research into Lewy body dementia, to help improve diagnosis and treatment of the disease in future. A new clinical trial started in 2018 at a number of different hospitals and research centres across the UK. If you or someone you know would like to […]

Invitation to research: Dementia with Lewy Bodies

We would like to invite you to take part in a new research study hosted by a research group based at Cardiff University. Since 2004 we have been interviewing people and collecting blood samples to try to understand more about how certain genes affect the likelihood of developing dementia. So far over 5000 people have […]