We have been informed that from 1st December 2021 the fundraising platform Virgin Money Giving is closing, and no further donations will be accepted. This means it will no longer be an option for supporters who are raising funds for The Lewy Body Society. We continue to have accounts with Justgiving, Facebook donation, and you can donate […]
In this blog, Dr Clarissa Giebel, Senior Research Fellow at the University of Liverpool, shares her experience of running the Great North Run in support of The Lewy Body Society. Thank you Clarissa, and well done on also completing the London Marathon a few weeks later. After 18 months, finally setting my trainers onto race-pavement […]
The London Marathon returned on 3rd October, with the first full-scale race for two years. Around 8,000 runners took part, with many more running a virtual marathon in locations across the UK. We were only able to secure a single entry in the race this year, but we were delighted that it was taken up […]
A review of Oscar winning drama The Father, starring Anthony Hopkins and Olivia Colman By Rachel Thompson, Consultant Admiral Nurse If I’m honest, I watched ‘The Father’ with some trepidation. Would it sympathetically portray the experience of dementia? Would it be true to the stories I have witnessed in supporting families? Or would it oversimplify and […]
Our popular Christmas cards are now available from our online shop. By purchasing these cards you will be supporting our efforts to raise awareness of Lewy body dementia, and fund research to help diagnose and treat the disease. Featuring original designs by Design 10 Ltd, they are sure to be as popular as in previous […]
In Lewy body dementia, problems such as hallucinations and delusions often arise. In some cases, these may present as ‘delusions of misidentification’, of which Capgras syndrome is one type. In Capgras syndrome, a person believes that a friend, spouse, parent, or other close family member has been replaced by an identical-looking impostor. This can be […]
Earlier this year we were contacted by a member of the Team RLS at RAF Akrotiri in Cyprus. They set themselves the challenge of running, walking and cycling the distance from RAF Brize Norton in Oxfordshire to RAF Akrotiri which is a total of 2,079 miles! One of the team members has a close relative […]
On Saturday 25th June, a team from Palo Alto Networks, a leading global cyber security company, completed their Hikers versus Bikers charity challenge, supported by their sponsor, Exclusive Networks. Nineteen walkers completed the Yorkshire Three Peaks, a 26 mile walk in the Yorkshire Dales over the summits of Pen-y-ghent, Whernside and Ingleborough. The “hares” team […]
We have received the following report from the University of Cambridge, which summarises the progress made following the award of a Lewy Body Society grant in 2015. There are some very positive outcomes, such as an improved understanding of imaging biomarkers in people living with Lewy body dementia, the recruitment of people living with LBD […]
This information about research methodology was shared at the International Mental Health Nursing Research Conference by Allison Bentley, Lead Research Nurse for Lewy body dementia at Cambridgeshire and Peterborough NHS Foundation Trust. This is part of a study funded by The Lewy Body Society focusing on the narrative stories of people living with Lewy body […]
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