Lewy Body Awareness Week: LBS birthday celebration announcement!

The Lewy Body Society has announced a year of celebration for its 20th anniversary during Lewy Body Awareness Week (June 23-29). Jacqui Cannon, CEO of the Lewy Body Society, said: “For this year’s Lewy Body Awareness Week, while we are proud of the impact we have made in 2024, we are looking ahead to the great […]

Capgras syndrome: my partner thought I was an imposter

Imagine looking at your loving partner of many years and suddenly having the creeping suspicion that it was not, in fact, your husband or wife, but someone pretending to be them and, worse still, no one else believes you. Becoming convinced that the person who loves you most and who is taking care of you […]

Help us mark the second annual World Lewy Body Day!

Graphic with a picture of the Earth with World Lewy Body Day in black bold text

Organisations from eleven countries, including Lewy Body Society in the UK, will collectively celebrate the second annual World Lewy Body Dementia Day on Tuesday, January 28, the birthday of renowned neurologist and neuropathologist Dr Fritz Jacob Heinrich Lewy (1885-1950) for whom the aggregations of misfolded alpha-synuclein proteins in the brain, now known as Lewy Bodies, […]

The Lewy Body Society Travel Bursary 2023

The Lewy Body Society was founded in 2006 and we are the only UK charity that focuses solely on Lewy body dementia. Our mission is to fund research into the disease and to raise awareness and understanding of it among medical professionals and the public. The charity is a member of the Association of Medical […]

Admiral Nurse Dementia Helpline – here to help

Did you know we work with the Admiral Nurse Dementia Helpline to provide support to families affected by Lewy body dementia?  We have always taken phone calls and emails from families facing a diagnosis of Lewy body dementia and wondering where to turn to for support, but a few years ago the number and complexity […]

New research projects funded through 2022 Grant Round

We are delighted to be funding these four important projects, as part of our 2022 grant round. Imaging neuromelanin using magnetic resonance imaging in dementia with Lewy bodies Elijah Mak, University of Cambridge – £176,000 Dementia with Lewy bodies (DLB) is a common cause of dementia in older people, accounting for over 100,000 cases in […]

Lewy Body Society statement regarding lecanemab trial

Responding to reports that trials of lecanemab have slowed the rate of cognitive decline in patients with Alzheimer’s Disease, Jacqui Cannon, Chief Executive of The Lewy Body Society said: “It is very exciting to hear about the positive findings that lecanemab may help with slowing the progression of Alzheimer’s disease. We know that many people […]

Care home celebrates key role in A Scarf for Lewy project

Following the success of A Scarf for Lewy (in which a 1600-metre/one mile scarf was wrapped seven time around the entire circumference of the Royal Albert Hall in London), a special event took place at Green Tree Court Care Home in Exeter last week (Thursday 3rd November). Green Tree Court played a crucial role in […]

Help secure media coverage for A Scarf for Lewy

We know that many hundreds of people have contributed to this project, by knitting a scarf or by attending the event with us on Friday. It will really help to raise awareness of Lewy body dementia if we get coverage in as many local newspapers as possible.  Every paper in the country will receive a […]

A Scarf for Lewy – countdown to the big day

On 14th October 20202 The Lewy Body Society will unveil a 1600-metre scarf around the entire circumference of the Royal Albert Hall in London – five times – to show support for those living with Lewy body dementia. More than 100 volunteers will be attending to help the dementia charity wrap the mile long scarf […]