New clinical trial seeks participants

One of the Lewy Body Society’s main aims is to support research into Lewy body dementia, to help improve diagnosis and treatment of the disease in future. A new clinical trial started in 2018 at a number of different hospitals and research centres across the UK. If you or someone you know would like to […]
Invitation to research: Dementia with Lewy Bodies

We would like to invite you to take part in a new research study hosted by a research group based at Cardiff University. Since 2004 we have been interviewing people and collecting blood samples to try to understand more about how certain genes affect the likelihood of developing dementia. So far over 5000 people have […]
Improving diagnosis and management in dementia with Lewy bodies using the CPFT Research Database (CRATE)

Improving diagnosis and management in dementia with Lewy bodies using the CPFT Research Database (CRATE) We would like to draw your attention to the following study, funded by the Alzheimer’s Society, which proposes to use anonymised clinical data from people with dementia who were seen within Cambridgeshire and Peterborough NHS Foundation Trust (CPFT) from 2005 […]
East Anglia Research

Are you or someone you care for living in East Anglia with a diagnosis of Lewy body dementia? Living with Lewy body dementia: Stories of Everyday Experience is a research study aimed at finding out your experiences of day to day living with Lewy body, so it can inform future nursing practices and care. Taking […]
YOU can help cure dementia

Here at the Lewy Body Society, we get a lot of calls from and other bodies who are conducting research into dementia. As a charity, funding and supporting research is our main priority, as we know that dementia research is not as advanced as for other common health conditions. It would be wonderful to eventually […]
Press release: A million pound effort to tackle Lewy body dementia

The Lewy Body Society, a charity dedicated to tackling the second most common form of dementia, has announced the latest recipients of its grants programme. The charity is awarding three grants totalling £314,000 for projects at the University of Cambridge, Newcastle University and Imperial College London. These grants take the total research funding issued by the charity […]
Imperial College London

Our third grant for 2018/19 is for a project which will examine brain tissue from those with and without LBD to identify differences in brain cell degeneration. Project name An investigation of Brainstem Nuclei in Dementia with Lewy Bodies and Parkinson’s Disease Dementia Project team Division of Brain Sciences, Department of Medicine, Imperial College London […]
Newcastle University

Our second grant for 2018/19 is for a project which aims to develop a new test for Lewy body dementia. Project name Developing biomechanical methods to detect dementia with Lewy bodies Project team Dr Marzena Kurzawa-Akanbi, Dr Christopher Morris, Institute of Neuroscience, Newcastle University (more information here) Prof Phil Whitfield, University of the Highlands and […]
University of Cambridge

Our first grant for 2018/19 is for a project which aims to identify ‘repurposed’ treatments for Lewy body dementia Project name Drug Repurposing for Dementia with Lewy Bodies Project team Led by Professor John T O’Brien, Department of Psychiatry, University of Cambridge (read Prof O’Brien’s biography here) Aim of the study To identify any existing drugs, […]
Patient attitudes to genome editing for prevention of heritable disorders: Social and Ethical implications

You are encouraged to take part in a research study conducted by University College London (UCL). The study aims to explore the opinions and knowledge of those in heritable disease communities regarding genome editing and its applications. This research is in the form of an online survey. The survey will explore the different aspects of […]