CEO attends Downing Street dementia workshop

Our CEO Jacquie Cannon partcicpated at a recent 10 Downing Street workshop on dementia. Here his her report: Tuesday 24th September 2013 – I attended a workshop at No.10 to prepare for the G8 Summit on Dementia Research on the 11th December 2013. It was an honor to represent the Lewy Body Society and great […]
Five ways to tell Lewy Body Dementia from Alzheimers

This information was first published in Dementia Today in Feb 2013. These are many ways that Alzheimer’s and LBD differ, including these five key differences: Alzheimer’s disease causes changes in the brain called plaques and tangles. LBD features the presence of Lewy bodies, which are misfolded alpha-synuclein proteins. In early Alzheimer’s, memory loss is prominent, […]
New checklists to aid symptom reporting for dementia with Lewy bodies

Source: Lewy Body Dementia Association (LBDA) in the US The Lewy Body Dementia Association (LBDA) announced on 21 August 2013 the launch of new resources for physicians and their patients. LBDA has created two new symptom checklists for dementia with Lewy bodies (DLB): an abbreviated checklist to assist in the reporting of DLB diagnostic symptoms […]
Advice on paying for care

PayingForCare is a not-for-profit organisation that helps people and their families access expert information on all matters relating to care. They have care experts on the phone to answer your questions and queries, a whole range of information available online anytime of the day, and can also put you in touch with a specialist care […]
Innovative training to improve care of people with dementia in hospitals

Academics and healthcare professionals as well as people with a diagnosis of dementia and family carers have teamed up to devise a new training programme called “Getting to Know Me” for general hospital staff. Originally developed in the Manchester area, to increase staff knowledge, confidence and skills in the delivery of care to people with […]
Melatonin and Sleeplessness

An article by Pat Snyder Pat has written an interesting account of one woman’s experience of using the drug melatonin to overcome her husband’s acute sleeplessness. For an edited version of the article please click here. Melatonin is available on the web or by prescription from your doctor who should be consulted before use. Pat […]
Research opportunity: photographic study

Researchers at Nottingham Trent University are looking for volunteers to take part in a photographic study exploring the role of places for identity and memory for people with dementia. Participation will include taking photos of your important places and discussing them with a researcher. Cameras are provided and all responses will be kept confidential and […]
Information for dementia carers – can you help?

The National Institute for Health and Care Excellence (NICE) have asked the Lewy Body Society for input from ‘experts by experience’ to ensure new information on the web to support the Dementia Quality Standard is relevant and helpful to dementia carers. NICE aims to explain how carers can use the Dementia Quality Standard to ensure […]
Sheffield Great Yorkshire Run – 29th September 2013

Chris Brailsford and his family’s running team is once again running for the Lewy Body Society in the Sheffield Great Yorkshire Run on the 29th September. The team is now 6 strong and spans 3 generations, as his Dad who is 73 is running with them this year. http://www.justgiving.com/teams/lewybody2013
Short films on dementia

The Social Care Institute for Excellence (SCIE) has produced several videos about caring for people with dementia at home and in care homes.