Carers’ Call to Action

At least 670,000 people in England have dementia and this number is set to double in the next 30 years. It is estimated that at least 550,000 people act as primary carers – this by no means reflects the number of children, extended family and friends whose lives are also affected. Caring for a loved […]
2 April – Scottish Caring and Dementia Congress

The Lewy Body Society had an exhibition stand at the Scottish Caring and Dementia Congress at Murrayfield, Edinburgh on 2 April, to build up contacts in Scotland. Thank you to everyone who came to say hello and sign up for information from us, including our new literature on Lewy body dementias that will be available […]
Protein May Hold the Key to Who Gets Alzheimer’s

Although the headline cites Alzheimer’s, the article mentions Lewy Body Dementia and details an important study. http://www.nytimes.com/2014/03/20/health/fetal-gene-may-protect-brain-fr…
Kate smashes Kili fundraising target

Kate Fellows, whose father has Lewy body dementia, climbed Mount Kilimanjaro in Tanzania in January to raise funds for the Lewy Body Society. She says, “With the incredible support of family, friends, people I have barely kept in touch with over the years, and total strangers on the street, I have now managed to raise […]
Living with Lewy body dementia

Written in 2012 by physiotherapist Judy Towne Jennings, this comprehensive guide benefits from professional and personal experience of Dementia with Lewy Bodies. Judy writes from personal experience of caring for her husband Dean and her many years of treating movement disorders. If you would be interested in reviewing this brave and unflinching account of the […]
Dementia scheme encourages health professionals to listen to carers

The Triangle of Care initiative for dementia, developed as a partnership between the Carers Trust, theRoyal College of Nursing and people with dementia and their carers, sets out a framework for meaningful engagement between professionals and those with first-hand experience of the condition. For more information, read The Guardian article on the Triangle of Care […]
G8 Dementia Summit

Prof Ian McKeith, President of the LBS who attended the G8 pre-summit meeting said: “The G8 summit meeting was an important landmark for dementia and recognises that awareness, research, treatment and care need to be improved for all types of dementia including DLB. We shall be working hard to ensure that people with DLB and […]
Dementia: Five priorities for research

[Source: BBC News] As the G8 meets in London to plan how to tackle dementia through international collaboration, here are the dementia research funding priorities from the scientific community.
Caz takes a punt at the Ponte-not-so-Vecchio!

Carolyn (Caz) Whittle will head from the heights of Derbyshire to the hills of Tuscany to run in the Florence Marathon on 24 November, where she will be raising money to help people affected by Lewy body dementias. You can find out Caz’s reasons for running – and also make a donation – by visiting […]
Andrea and Sean scale Kilimanjaro

Families hit by a Lewy Body Dementia can feel they’ve got a mountain to climb as they face the impact of the symptoms, grappling with health and social care arrangements and sometimes holding on by their finger-tips to a sense of normality. Now Andrea and Sean have scaled an iconic peak, Kilimanjaro, the highest freestanding […]