If you are looking for a guide to Lewy body dementias, Dementia with Lewy Bodies and Parkinson’s Disease Dementia: Patient, Family, and Clinician Working Together for Better Outcomes written by Dr. J. Eric Ahlskog may be of interest. In it, Dr Ahlskog draws on 30 years of clinical and research work at the Mayo Clinic to arm patients and families with crucial information that will enable them to work in tandem with their doctors.
Professor Ian McKeith, President of the Lewy Body Society, has reviewed the book for this website:
“There are very few handbooks available for people with Lewy body dementias and their families, so I was interested to buy this one at an affordable price (£17.37 from a well know internet supplier). It is written by an experienced doctor who has done a good job of translating the usual jargon and terminology into plain English although there is an inevitable US feel to some of the information about treatment names and a bias towards information about the management of motor (parkinsonian) symptoms. I liked the general approach with chapter headings like “What is Known about the Cause?” and “Are there Medications for Disease Progression?”. If only there were simple answers to these. The book also covers cognitive problems, sleep problems, bladder, bowels and constipation as well as hallucinations, depression and the benefits of regular exercise. There is a useful glossary that explains some of the words which regularly crop up, and some very nice diagrams to illustrate the areas that Lewy body disease affects. So from the perspective of another doctor I thought this was a pretty accurate and useful book which is sympathetically and carefully written.”