A Scarf For Lewy Belfast

A Scarf For Lewy Belfast On 17th October we held our long-awaited awareness-raising event in Belfast, which was the second time we have wrapped ‘A Scarf for Lewy’ around a major landmark building.    The mile-long scarf which was lovingly knitted by volunteers last year and wrapped around the Royal Albert Hall in London was transported across the […]

The Lewy Body Society Travel Bursary 2023

The Lewy Body Society was founded in 2006 and we are the only UK charity that focuses solely on Lewy body dementia. Our mission is to fund research into the disease and to raise awareness and understanding of it among medical professionals and the public. The charity is a member of the Association of Medical […]

Admiral Nurse Dementia Helpline – here to help

Did you know we work with the Admiral Nurse Dementia Helpline to provide support to families affected by Lewy body dementia?  We have always taken phone calls and emails from families facing a diagnosis of Lewy body dementia and wondering where to turn to for support, but a few years ago the number and complexity […]

New research projects funded through 2022 Grant Round

We are delighted to be funding these four important projects, as part of our 2022 grant round. Imaging neuromelanin using magnetic resonance imaging in dementia with Lewy bodies Elijah Mak, University of Cambridge – £176,000 Dementia with Lewy bodies (DLB) is a common cause of dementia in older people, accounting for over 100,000 cases in […]

Lewy Body Society statement regarding lecanemab trial

Responding to reports that trials of lecanemab have slowed the rate of cognitive decline in patients with Alzheimer’s Disease, Jacqui Cannon, Chief Executive of The Lewy Body Society said: “It is very exciting to hear about the positive findings that lecanemab may help with slowing the progression of Alzheimer’s disease. We know that many people […]

Care home celebrates key role in A Scarf for Lewy project

Following the success of A Scarf for Lewy (in which a 1600-metre/one mile scarf was wrapped seven time around the entire circumference of the Royal Albert Hall in London), a special event took place at Green Tree Court Care Home in Exeter last week (Thursday 3rd November). Green Tree Court played a crucial role in […]

Press release: Royal Albert Hall wrapped up with a mile long charity scarf

Bystanders were taken aback by a huge scarf wrapped around the entire circumference of the Royal Albert Hall in London today, all in support of a dementia charity. The Lewy Body Society appealed for people from across the country to knit their own scarf to make up the mile-long scarf, which was proudly displayed around […]

Help secure media coverage for A Scarf for Lewy

We know that many hundreds of people have contributed to this project, by knitting a scarf or by attending the event with us on Friday. It will really help to raise awareness of Lewy body dementia if we get coverage in as many local newspapers as possible.  Every paper in the country will receive a […]

A Scarf for Lewy – countdown to the big day

On 14th October 20202 The Lewy Body Society will unveil a 1600-metre scarf around the entire circumference of the Royal Albert Hall in London – five times – to show support for those living with Lewy body dementia. More than 100 volunteers will be attending to help the dementia charity wrap the mile long scarf […]

A Scarf for Lewy – event postponed

We are deeply saddened to hear the news of the death of Her Majesty Queen Elizabeth II. Our thoughts are with the Royal Family and all those around the world who will mourn her loss. Following this news, and after discussions with the Royal Albert Hall, we have decided to postpone the A Scarf for […]