This week, Tom Skinner passed the month mark in his solo row across the Atlantic, inspired by his father-in-law Jon, who is living with Lewy body dementia. The financial planning director is taking part in the world’s toughest row, a 3000-mile unsupported race across the Atlantic Ocean from the Canary Islands to the Caribbean, aiming […]
The Lewy Body Society has partnered with the University of Liverpool to develop a new children’s board game that helps younger generations understand dementia. The Dementia Explorer Game is designed for ages 7–11 and encourages children to learn about dementia through play. Developed with input from local schoolchildren, the game covers four themes: learning about […]
The Lewy Body Society has announced a year of celebration for its 20th anniversary during Lewy Body Awareness Week (June 23-29). Jacqui Cannon, CEO of the Lewy Body Society, said: “For this year’s Lewy Body Awareness Week, while we are proud of the impact we have made in 2024, we are looking ahead to the great […]
Imagine looking at your loving partner of many years and suddenly having the creeping suspicion that it was not, in fact, your husband or wife, but someone pretending to be them and, worse still, no one else believes you. Becoming convinced that the person who loves you most and who is taking care of you […]
Organisations from eleven countries, including Lewy Body Society in the UK, will collectively celebrate the second annual World Lewy Body Dementia Day on Tuesday, January 28, the birthday of renowned neurologist and neuropathologist Dr Fritz Jacob Heinrich Lewy (1885-1950) for whom the aggregations of misfolded alpha-synuclein proteins in the brain, now known as Lewy Bodies, […]
The Lewy Body Society was founded in 2006 and we are the only UK charity that focuses solely on Lewy body dementia. Our mission is to fund research into the disease and to raise awareness and understanding of it among medical professionals and the public. The charity is a member of the Association of Medical […]
Did you know we work with the Admiral Nurse Dementia Helpline to provide support to families affected by Lewy body dementia? We have always taken phone calls and emails from families facing a diagnosis of Lewy body dementia and wondering where to turn to for support, but a few years ago the number and complexity […]
We are delighted to be funding these four important projects, as part of our 2022 grant round. Imaging neuromelanin using magnetic resonance imaging in dementia with Lewy bodies Elijah Mak, University of Cambridge – £176,000 Dementia with Lewy bodies (DLB) is a common cause of dementia in older people, accounting for over 100,000 cases in […]
Responding to reports that trials of lecanemab have slowed the rate of cognitive decline in patients with Alzheimer’s Disease, Jacqui Cannon, Chief Executive of The Lewy Body Society said: “It is very exciting to hear about the positive findings that lecanemab may help with slowing the progression of Alzheimer’s disease. We know that many people […]
Following the success of A Scarf for Lewy (in which a 1600-metre/one mile scarf was wrapped seven time around the entire circumference of the Royal Albert Hall in London), a special event took place at Green Tree Court Care Home in Exeter last week (Thursday 3rd November). Green Tree Court played a crucial role in […]
