Thank you to Palo Alto Networks and Exclusive Networks for raising over £5000 towards Lewy body research
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On Saturday 25th June, a team from Palo Alto Networks, a leading global cyber security company, completed their Hikers versus Bikers charity challenge, supported by their sponsor, Exclusive Networks. Nineteen walkers completed the Yorkshire Three Peaks, a 26 mile walk in the Yorkshire Dales over the summits of Pen-y-ghent, Whernside and Ingleborough. The “hares” team […]
Research summary report: Multimodal Imaging in Lewy Body Disorders
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We have received the following report from the University of Cambridge, which summarises the progress made following the award of a Lewy Body Society grant in 2015. There are some very positive outcomes, such as an improved understanding of imaging biomarkers in people living with Lewy body dementia, the recruitment of people living with LBD […]
Research methodology update: Analysing the personal experience of couples living and dying with Lewy body dementia
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This information about research methodology was shared at the International Mental Health Nursing Research Conference by Allison Bentley, Lead Research Nurse for Lewy body dementia at Cambridgeshire and Peterborough NHS Foundation Trust. This is part of a study funded by The Lewy Body Society focusing on the narrative stories of people living with Lewy body […]
Research update: support for people living with LBD and family carers
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Study Title: The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners We have received an update from Newcastle University about a study that was supported by The Lewy Body Society, which we wanted to share with our supporters. Background Clinicians and people with lived […]
Lewy Body UK Conference
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We were delighted to work with a team of academics – Rimona Weil (UCL), Claire O’Callaghan (The University of Sydney) & John-Paul Taylor (Newcastle University) – to host the Lewy Body UK 2021 Scientific Conference on 15th June. With 15 speakers in total, some from as far away as Australia and the USA, it was […]
Hallucinations – new leaflet and webinar on 5th July
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Hallucinations and changes in visual perception can be among the most challenging symptoms of Lewy body dementia, both for the person living with the disease and their family/caregivers. That’s why we’ve produced a new resource with information and tips about how to manage hallucinations, based on feedback from people living with LBD and their carers. […]
My father and Lewy body dementia – an essay by Jane Sigaloff
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As Lewy Body Dementia Awareness Week 2021 gets underway, we are delighted to publish a special essay by Jane Sigaloff. Jane is a published author and in this powerful piece she describes the range of emotions she experienced during her father’s Lewy body dementia journey. Peter was diagnosed with Lewy body dementia in 2015 and […]
New Trustees for The Lewy Body Society
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The Lewy Body Society, the only UK-based charity dedicated exclusively to Lewy body dementia (the second most common type of dementia in older people), has welcomed three new members to its Board of Trustees. Liz Bewley, Carol Bewick and Doug Pattison join The Lewy Body Society as it celebrates 15 years since it was founded […]
Dotty Days coffee morning – celebrating 15 years of the Lewy Body Society
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9th June 2021, 11am. Via Zoom Dotty Days, otherwise known as Lewy body awareness week, takes place from 6-13th June 2021. This year is extra special as it is our 15th birthday as a charity. We remain the only UK-based charity focused exclusively on Lewy body dementia. Join us for a virtual get together during […]
Dementia Action Week – sign the petition to cure the care system
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Dementia Action Week takes place from 17-23 May 2021 and we are supporting Alzheimer’s Society and other dementia charities in calling for governments in th UK to fix the broken care system. This powerful film shows how without support, dementia can claim more than one life. It is a message we wholeheartedly agree with, and […]