Research summary report: Multimodal Imaging in Lewy Body Disorders

We have received the following report from the University of Cambridge, which summarises the progress made following the award of a Lewy Body Society grant in 2015. There are some very positive outcomes, such as an improved understanding of imaging biomarkers in people living with Lewy body dementia, the recruitment of people living with LBD […]

Research update: support for people living with LBD and family carers

Study Title: The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners We have received an update from Newcastle University about a study that was supported by The Lewy Body Society, which we wanted to share with our supporters. Background Clinicians and people with lived […]

Lewy Body UK Conference

We were delighted to work with a team of academics – Rimona Weil (UCL), Claire O’Callaghan (The University of Sydney) & John-Paul Taylor (Newcastle University) – to host the Lewy Body UK 2021 Scientific Conference on 15th June. With 15 speakers in total, some from as far away as Australia and the USA, it was […]

Hallucinations – new leaflet and webinar on 5th July

Hallucinations and changes in visual perception can be among the most challenging symptoms of Lewy body dementia, both for the person living with the disease and their family/caregivers. That’s why we’ve produced a new resource with information and tips about how to manage hallucinations, based on feedback from people living with LBD and their carers. […]

My father and Lewy body dementia – an essay by Jane Sigaloff

As Lewy Body Dementia Awareness Week 2021 gets underway, we are delighted to publish a special essay by Jane Sigaloff.   Jane is a published author and in this powerful piece she describes the range of emotions she experienced during her father’s Lewy body dementia journey.  Peter was diagnosed with Lewy body dementia in 2015 and […]

New Trustees for The Lewy Body Society

The Lewy Body Society, the only UK-based charity dedicated exclusively to Lewy body dementia (the second most common type of dementia in older people), has welcomed three new members to its Board of Trustees. Liz Bewley, Carol Bewick and Doug Pattison join The Lewy Body Society as it celebrates 15 years since it was founded […]

Dotty Days coffee morning – celebrating 15 years of the Lewy Body Society

9th June 2021, 11am.  Via Zoom Dotty Days, otherwise known as Lewy body awareness week, takes place from 6-13th June 2021. This year is extra special as it is our 15th birthday as a charity. We remain the only UK-based charity focused exclusively on Lewy body dementia. Join us for a virtual get together during […]

Dementia Action Week – sign the petition to cure the care system

Dementia Action Week takes place from 17-23 May 2021 and we are supporting Alzheimer’s Society and other dementia charities in calling for governments in th UK to fix the broken care system. This powerful film shows how without support, dementia can claim more than one life.  It is a message we wholeheartedly agree with, and […]

Lewy body dementia awareness week ‘Dotty Days’ 6-12 June 2021

We are delighted to confirm that this year’s Dotty Days – otherwise known as Lewy body dementia awareness week – will take place from 6th-12th June. It’s an extra special one this year as we are celebrating our 15th year as a charity, and we remain the only UK-based organisation focused solely on LBD. There […]