Carers Week is an annual campaign to raise awareness of caring, highlight the challenges unpaid carers face and recognise the contribution they make to families and communities throughout the UK. It also helps people who don’t think of themselves as having caring responsibilities to identify as carers and access much-needed support. The campaign is brought […]
Following the fantastic support from Dame Prue Leith, additional celebrity backing for our campaign has come from actress Paula Wilcox and presenter Anne Robinson. Both have kindly knitted a scarf to help us raise awareness of Lewy body dementia. The scarves will be joined with hundreds of others and wrapped around the Royal Albert Hall […]
This week (16-22 May) is Dementia Action Week, organised by Alzheimer’s Society, and the key message of this year’s campaign is: It’s not called getting old, it’s called getting ill. Every three minutes someone develops dementia, but right now, there are thousands of people who are in the dark about their diagnosis – they may […]
Our Lewy Body Dementia Awareness Week ‘Dotty Days’ will this year take place from 27th June to 3rd July. If you have an idea for an event to raise awareness or fundraise, then please get in touch. We can provide you with a fundraising pack and help you make the most of your event.
Join Dame Prue Leith DBL and knit ‘A Scarf for Lewy’ to wrap around the Royal Albert Hall A Scarf for Lewy, the campaign by The Lewy Body Society to wrap the Royal Albert Hall in a huge scarf to raise awareness of Lewy body dementia, has been given a boost with the support of […]
The Lewy Body Society and Dementia UK have today published a new leaflet to support people living with the disease, their families and carers, to manage a common and at times distressing symptom. People with Lewy body dementia are more likely to experience symptoms of delusion and misidentification (ie not recognising someone or something) than […]
The Lewy Body Society is very sad to hear that our Patron Miss June Brown OBE has died and we would like to offer our deepest condolences to her family and friends for their loss. The society has been honoured to have Miss June Brown OBE as its Patron for its 16 years and we […]
Please see below information about a University of Reading study which focuses on informal (i.e. unpaid) caregivers of individuals with parkinsonism symptoms. They are building an online intervention to support these caregivers, but first need to garner their opinions and feedback about the website’s features. Who can take part? Do you provide unpaid care to […]
On 22nd September 2022 we are holding an event with a difference… We are going to wrap a huge scarf around the entire circumference of the Royal Albert Hall in London, a massive 244m. All to raise awareness of Lewy body dementia, the second most common type of dementia in older people. Lewy body dementia […]
You can now register for the International Lewy Body Dementia Conference 2022! It will be a great chance to meet other people affected by the disease and hear about the latest developments in research. The ‘Living with Lewy’ strand, aimed at people living with dementia and carers, is free to attend and takes place on […]
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