Miss June Brown OBE

The Lewy Body Society is very sad to hear that our Patron Miss June Brown OBE has died and we would like to offer our deepest condolences to her family and friends for their loss. The society has been honoured to have Miss June Brown OBE as its Patron for its 16 years and we […]

New study seeks carers to complete an online survey

Please see below information about a University of Reading study which focuses on informal (i.e. unpaid) caregivers of individuals with parkinsonism symptoms. They are building an online intervention to support these caregivers, but first need to garner their opinions and feedback about the website’s features. Who can take part? Do you provide unpaid care to […]

A Scarf for Lewy

On 22nd September 2022 we are holding an event with a difference… We are going to wrap a huge scarf around the entire circumference of the Royal Albert Hall in London, a massive 244m.  All to raise awareness of Lewy body dementia, the second most common type of dementia in older people. Lewy body dementia […]

New members sought for our Specialist Advisory Committee

The Specialist Advisory Committee (SAC) of The Lewy Body Society is looking for new members. The SAC is a multi-disciplinary team of health and social care professionals with backgrounds in research and practice. It is responsible for reviewing all grant applications and advising the Lewy Body Society on its workplan, adding credibility to the charity and […]

Registration now open for ILBDC2022

You can now register for the International Lewy Body Dementia Conference 2022!  It will be a great chance to meet other people affected by the disease and hear about the latest developments in research. The ‘Living with Lewy’ strand, aimed at people living with dementia and carers, is free to attend and takes place on […]

Fantastic Christmas and New Year fundraisers

Thank you to Philipa Jones and her friends and family who braved the cold sea on New Years Day.  They raised a fantastic £825 and raised awareness of Lewy body dementia by wearing dots and proudly displaying our banner. Our grateful thanks also to our Ambassador Les Magee who raised £450 with her annual Christmas at […]

Grant Round 2022

We are the only charity dedicated solely to Lewy body dementia in the UK. Through our application and review process we aim to fund the highest quality research so that we can make a real difference to the lives of people with LBD. We are pleased to announce that the call for applications to our […]

Thank you for your support in 2021

We would like to wish all of our followers and supporters a very Happy Christmas and our best wishes for a restful and healthy festive season. 2021 marked our 15th year as a registered charity and it has been a busy year for our small team. Here are just a few of our highlights: we […]

Three-legged runners raise over £15,000 for Lewy body dementia research

A huge THANK YOU to the amazing Vicky and her friend Alison who completed the Exeter half marathon on three legs, dressed as Tweedle Dee & Tweedle Dum. Through this amazing feat they raised more than £15,500 for The Lewy Body Society. Vicky has chosen to support The Lewy Body Society as her husband Peter was […]