End of year message from The Lewy Body Society

We will shortly be taking a break over the Christmas and New Year period, so we wanted to send our very best wishes to all our supporters and your families. Thank you to everyone who has contributed to our work during 2022, including Trustees, partners and our Specialist Advisory Committee.

It has been another busy year for our small team, and these are just some of our highlights:

  • Our latest round of research funding was announced, taking our total funding distributed to nearly £2.2 million. Read more here.
  • A fabulous day at the Royal Albert Hall for A Scarf for Lewy generated lots of media coverage, celebrity endorsement and a mile of colourful scarves to raise awareness of LBD.
  • The International Lewy Body Dementia Conference took place in Newcastle, and we welcomed delegates from around the world and launched Lewy Body International.
  • We published a new leaflet on delusions, misidentifications and Capgras syndrome, a popular addition to our resources, and our first ever book for children, helping the younger generation to understand Lewy body dementia.
  • The second Lewy Body Academy took place in Sheffield – read more here.
  • We joined the Carers Week campaign for the first time, joining with other charities to call for more support for LBD carers.

In less positive news we mourned our patron June Brown OBE who died in April. June had been a fantastic support to us since the organisation was founded, and she is much missed.

Looking ahead to 2023 we are excited to be starting work on a new website, which will help us communicate better with anyone seeking information about Lewy body dementia, current research and ways to get involved.

If you need support over Christmas check out this article from Dementia UK which contains some useful tips. The Admiral Nurse Dementia Helpline is available on 0800 888 6678 every day except Christmas Day.

best wishes and Happy Christmas,

Jacqui Cannon, Chief Executive