New book to help children understand Lewy body dementia

What are Lewy bodies? is a new book by award-winning author Alex Winstanley aimed at children aged 5-11.  It explains Lewy body dementia in a fun and accessible way, to help the younger generation understand this common but little-known disease. Lewy body dementia is the second most common type of dementia in older people and is […]

Tender for new website

We are looking for a company to work with to design and develop a new website.  Our current website ( was created in 2015 and we believe a new and improved website will help us reach more people affected by Lewy body dementia, and more professionals and researchers, as well as helping them engage more […]

A Scarf for Lewy – new date confirmed

We are pleased to confirm the new date for A Scarf for Lewy, which was postponed due to the death of Her Majesty Queen Elizabeth II. The event will now take place on Friday 14th October 2022, at the Royal Albert Hall. We will be wrapping a giant scarf FIVE TIMES around this iconic building […]

Case study – Kim’s story

Thank you to Kim Robinson and her family for sharing their experience of caring during the Covid-19 pandemic.  As part of Carers Week, Kim attended an event at the Houses of Parliment and spoke to MPs and Peers about her caring role and Lewy body dementia.  I care for my dad who was diagnosed with […]

Case study – Heather’s story

Thank you to Heather Ritchie for sharing her story as part of the Carers Week report. Read the report and recommendations here. Carers Week charities are calling for an urgent 12-month plan of targeted support for unpaid carers, as many struggle with the ongoing impact, as well as the legacy, of the pandemic, together with […]

Carers Week 2022 – add your voice to the campaign!

Carers Week is an annual campaign to raise awareness of caring, highlight the challenges unpaid carers face and recognise the contribution they make to families and communities throughout the UK. It also helps people who don’t think of themselves as having caring responsibilities to identify as carers and access much-needed support. The campaign is brought […]

More celebrity support for A Scarf for Lewy

Following the fantastic support from Dame Prue Leith, additional celebrity backing for our campaign has come from actress Paula Wilcox and presenter Anne Robinson.   Both have kindly knitted a scarf to help us raise awareness of Lewy body dementia.  The scarves will be joined with hundreds of others and wrapped around the Royal Albert Hall […]

Dementia Action Week 2022

This week (16-22 May) is Dementia Action Week, organised by Alzheimer’s Society, and the key message of this year’s campaign is: It’s not called getting old, it’s called getting ill. Every three minutes someone develops dementia, but right now, there are thousands of people who are in the dark about their diagnosis – they may […]