A Scarf For Lewy in Scotland!

Well done to Lorraine and friends who braved a cold and foggy morning and wrapped a 530m scarf around Bennachie, a famous hill in Inverurie. Lorraine, along with her friends Jenny and Matthew, take on a different challenge every year and call themselves ‘The Wallys’ They knitted in memory of Patrick McRobbie who died last […]

Carols by Candlelight in York Minster

We were delighted to be the chosen charity for the Chapter House Choir’s annual Carols by Candlelight concert last Saturday in the nave of York Minster, and for the 1,400 attendees to have learned a little about Lewy body dementia through the introduction from the Dean of York. The choir, directed by Benjamin Morris, was […]

New research projects funded through 2022 Grant Round

We are delighted to be funding these four important projects, as part of our 2022 grant round. Imaging neuromelanin using magnetic resonance imaging in dementia with Lewy bodies Elijah Mak, University of Cambridge – £176,000 Dementia with Lewy bodies (DLB) is a common cause of dementia in older people, accounting for over 100,000 cases in […]

Charity’s largest ever funding pot awarded to universities to study Lewy body dementia

The Lewy Body Society, a charity dedicated to tackling Lewy body dementia (the second most common form of dementia in older people) has announced the latest recipients of its grants programme. The charity is awarding four grants totalling £464,000 for projects at University of Cambridge, University of Southampton, Queen’s University Belfast and Newcastle University. The […]

Olivia’s Mount Kilimanjaro challenge

We would like to say a big well done and thank you to Olivia Roffe from Long Sutton in Lincolnshire who successfully climbed Mount Kilimanjaro, reaching the summit of the 5,895m high mountain, in Tanzania, after a week of hiking. She raised £2,300 to support our work in memory of her Grandad Brian Osborn who […]

New book to help children understand Lewy body dementia

What are Lewy bodies? is a new book by award-winning author Alex Winstanley aimed at children aged 5-11.  It explains Lewy body dementia in a fun and accessible way, to help the younger generation understand this common but little-known disease. Lewy body dementia is the second most common type of dementia in older people and is […]

Tender for new website

We are looking for a company to work with to design and develop a new website.  Our current website (www.lewybody.org) was created in 2015 and we believe a new and improved website will help us reach more people affected by Lewy body dementia, and more professionals and researchers, as well as helping them engage more […]

A Scarf for Lewy – new date confirmed

We are pleased to confirm the new date for A Scarf for Lewy, which was postponed due to the death of Her Majesty Queen Elizabeth II. The event will now take place on Friday 14th October 2022, at the Royal Albert Hall. We will be wrapping a giant scarf FIVE TIMES around this iconic building […]

Case study – Kim’s story

Thank you to Kim Robinson and her family for sharing their experience of caring during the Covid-19 pandemic.  As part of Carers Week, Kim attended an event at the Houses of Parliment and spoke to MPs and Peers about her caring role and Lewy body dementia.  I care for my dad who was diagnosed with […]