Lewy Body Society awards record amount in research grants

The Lewy Body Society has awarded almost £600,000 in research grants to universities across the UK in the largest-ever funding round for the charity.  It brings the total LBS funding of Lewy body dementia research to £3.4 million over its 19-year history. The Lewy Body Society receives no government funding, so the funds are entirely […]

Lewy Body Society’s educational dementia game shortlisted for top academic award

The Lewy Body Society’s Dementia Inequalities Game has been shortlisted as Innovation of the Year by the University of Liverpool. Co-produced with the University’s Dementia Research Group and people with lived experience of the disease, the game teaches health and social care professionals and the general public about the difficulties faced before and after receiving […]

Lewy Body Society announces new specialist advisory committee members

We are delighted to introduce the newest members of the Lewy Body Society Specialist Advisory Committee. Our SAC ensures we make objective funding decisions that comply with our research strategy and are the best use of the funds so generously donated by our supporters.  The UK-based panel of experts review all applications for our grant […]

Rob Rinder is Lewy Body Society’s new patron

Rob Rinder, blonde-haired man smiling in blue suit

The Trustees of the Lewy Body Society are delighted to announce Rob Rinder as our patron. The renowned barrister, broadcaster and author’s father is living with Lewy body dementia and he has frequently spoken out about the challenges that people with the disease and their families face. Lewy body dementia is the second most common […]

UCA students and film industry’s pro-bono collab for LBS’s first commercial

Jacqui Cannon on set with the students from UCA to film the Lewy Body dementia commercial

The Lewy Body Society has released its first ever commercial on World Lewy Body Day. The mini-film will get its global premiere this week at the eighth International Lewy Body Dementia Conference, in Amsterdam. Student creators from the University for the Creative Arts (UCA) worked pro-bono at the world-famous Pinewood Studios, in association with Sony […]

Support our Lewy List demands for action on World Lewy Body Day

CEO of Lewy Body Society Jacqui Cannon sitting in front of a screen showing the Lewy List petition page

The Lewy Body Society is calling on the government to improve the lives of 100,000 people with Lewy body dementia in the UK, in the face of the global dementia health crisis. Affecting 11 million people worldwide, the number of individuals with this Lewy body dementia is predicted to rise dramatically as life expectancy increases […]

Lessons I have learned as a Lewy body dementia carer

Becoming an unpaid carer when your partner or parent is diagnosed with dementia is hard – it is full-time (and then some) job for which very few are remotely qualified when they are thrust into the role. It is even harder when they have a much-misunderstood form of the condition, such as Lewy body dementia. […]

Capgras syndrome: my partner thought I was an imposter

Imagine looking at your loving partner of many years and suddenly having the creeping suspicion that it was not, in fact, your husband or wife, but someone pretending to be them and, worse still, no one else believes you. Becoming convinced that the person who loves you most and who is taking care of you […]

The Miners dig deep to reach Lewy Body Society fundraising goal

John Mills and David Watts in the stands at a recent home game for Maltby Main FC. Both are wearing big coats and are smiling

Football fans have their eyes on a charity goal inspired by one of their own. Supporters of Maltby Main FC are raising money for Lewy Body Society after one of the club’s most faithful servants was diagnosed with the disease. Lewy body dementia is the second most common form of dementia in older people but […]