Time to put carers on the map

The Lewy Body Society has joined forces with other national charities this Carers Week to put carers on the map and get them the recognition they deserve for the huge contribution that unpaid carers make in our community.

Millions of the UK’s unpaid carers looking after disabled, older or ill relatives or friends are faced with no choice about taking on an unpaid caring role due to a lack of alternative care options, according to analysis of YouGov polling data published to mark Carers Week 2024 (10-16 June).

Responding to a YouGov Omnibus poll of nearly 6,500 members of the public, 62% of current and former unpaid carers said they had no choice – the equivalent to 10 million adult unpaid carers. By contrast, 29% of current and former unpaid carers said that other care options were available, but they chose to undertake the unpaid carer role.

The research also suggested that the situation may be getting worse with those currently providing unpaid care more likely than former unpaid carers to say they had no choice in taking on a caring role (66% compared to 59%), due to a lack of available care options. 

For many, performing the role with little support is taking a heavy toll. While caring can be rewarding in many ways, those who responded to the survey found the impact of providing unpaid care was more negative than positive, with the biggest negative effect being on those current and former unpaid carers who said they had no choice about caring saying it had a ‘slightly or ‘very’ negative impact on the following: 

  • 70% on their mental health
  • 60% on their physical health
  • 56% on their job and ability to work
  • 54% on their finances and savings
  • 43% on their relationships

The report also found that women were more likely than men to say unpaid caring had a ‘very’ negative impact on mental health (27% compared with 19%) and on their job and ability to work (22% compared with 16%). A higher proportion of women said unpaid caring had a ‘very’ or ‘slightly’ negative impact on their relationships compared with men (42% compared with 30%) and on their physical heath compared to men (59% compared with 42%). 

Those aged 45 to 54 were most likely to have no choice when taking on an unpaid caring role (70%) and were most likely to say that unpaid caring has had a ‘very’ or ‘slightly’ negative impact on their finances and savings (56%), job and ability to work (64%) and pensions (30%), compared to other age groups.

An additional YouGov Political Omnibus poll of over 4,200 members of the public showed widespread backing for more support to be given to unpaid carers. 73% said there should be more government support from the next Government.

Despite their huge contribution, far too many unpaid carers do not feel supported in their role amidst a widespread lack of support from health and social care services. It is estimated that unpaid carers save the economy an incredible £162 million a year – the equivalent of a second NHS. Yet, many unpaid carers feel their role is forgotten and invisible.

It is estimated that around 10.1 million people have been or are currently an unpaid carer and since 2011, the number of hours of unpaid care being provided has increased significantly, with 1.5 million people in England and Wales now caring for over 50 hours every week.

Helen Walker, Chief Executive of Carers UK said: 

“These findings demonstrate how caring can have a profound effect on every aspect of life and wellbeing, from mental and physical health, being able to work, or affecting their future income including pensions. That’s why we need to see a future Government deliver action across Government, in the form of a National Carers Strategy.  With an ageing population, this is becoming ever more important. 

“Carers Week is an important annual opportunity to ‘put carers on the map’. We want unpaid carers to know they are not forgotten, and they are not alone. Many are at breaking point, facing huge challenges with their caring responsibilities. On top of this they are struggling to manage their own health and wellbeing. Carers are worried about their long-term health, security and ability to care in the future.”

Jacqui Cannon, Chief Executive of Lewy Body Society said: 

“Carers play such an important role in society, looking after family members that they love and adore and want to give their addition to but also have to juggle other life responsibilities. Join us in “Putting Carers on the Map” this Carers Week by recognising the huge contribution that unpaid carers make in our community.”

Carers Week is taking place this week from 10 – 16 June. It is a UK-wide awareness campaign seeking to increase visibility for carers with decision makers, services, employers, communities, and businesses. This year’s theme ‘Putting carers on the Map’ aims to bring much-needed recognition to unpaid carers that they feel they need. 

Find more information about how we support carers with our free online resources.