Dementia with Lewy bodies receives formal recognition and classification

Although DLB has been “known about” as a diagnosis for almost 20 years, progress in spreading this knowledge has been hampered by it lacking official recognition in the formal systems which are used by healthcare and research funders. One of the two most influential systems is the Diagnostic and Statistical Manual of Mental Disorders (DSM) […]

Great London Run 2013

Well done and thank you to Macushla Hughes for completing the Great London Run (14th July 2013) on such a hot day.

Working in partnership with carers – SCIE Dementia Gateway

Social Care Institute for Excellence (SCIE) have launched a new section on working in partnership with carers on their Dementia Gateway. Recognising that the carer is very often the person who knows and understands the person with dementia best, this new section gives practical tips and advice to health and social care staff to support […]

24 July – From journey’s end to the light at the end of the bay….

On Wednesday 24 July, Ian Deeprose cycled a coastal route of 50 miles from Mount Tryon in Torquay to Start Point lighthouse and back, in memory of his mother, Rosemary Deeprose, who passed away at Mount Tryon Care Home on Boxing Day 2012, following a two year struggle against dementia with Lewy bodies. Two of […]

James Lind Alliance publishes dementia research priorities

James Lind Alliance has published the top ten priorities from its Dementia Research Priorities-setting Programme. Thank you to everyone who contributed to this piece of work. The final top 10 priorities are: What are the most effective components of care that keep a person with dementia as independent as they can be at all stages […]

Scientists create first 3D digital brain

[Source: BBC] Researchers have created the first high-resolution 3D digital model of the human brain, which they have called “Big Brain”. The reconstruction shows the brain’s anatomy in microscopic detail, enabling researchers to see features smaller than a strand of hair. It will be made freely available to neuroscientists to help them in their research. […]

Falls – information for people affected by Lewy body dementias

LBS took the opportunity of the annual Falls Awareness Week co-ordinated by Age UK to share information about falls caused by Lewy body dementias (LBDs). Repeated falls are common for people LBDs, either dementia with Lewy bodies or Parkinson’s dementia. Falling can be a very early symptom of dementia with Lewy bodies (DLB) and may […]

Acting out dreams linked to development of Lewy body dementia

The strongest predictor of whether a man is developing dementia with Lewy bodies — the second most common form of dementia in the elderly — is whether he acts out his dreams while sleeping, Mayo Clinic researchers have discovered. Patients are five times more likely to have dementia with Lewy bodies if they experience a […]

Jurassic Lewy Body Support Group

Jurrasic GROUP FOR W DORSET, E DEVON, and S SOMERSET DO YOU – YOUR PARTNER – YOUR PARENT – OR SOMEONE YOU CARE FOR have Lewy Body Dementia? You need not be alone. To meet others in the area who have or who care for someone with this condition to form a hobnobbing, hand holding, […]

‘Fabulous night’ honours Cheshire man with DLB

  The family of Gwil Debnam of Ince near Chester have held a Dinner Dance and Auction in his memory, to raise awareness of dementia with Lewy bodies, which he battled for five years, and support the work of the Lewy Body Society. The Dinner Dance took place on Saturday 15th June – to coincide […]