The National Institute for Health and Care Excellence (NICE) have asked the Lewy Body Society for input from ‘experts by experience’ to ensure new information on the web to support the Dementia Quality Standard is relevant and helpful to dementia carers. NICE aims to explain how carers can use the Dementia Quality Standard to ensure […]
Chris Brailsford and his family’s running team is once again running for the Lewy Body Society in the Sheffield Great Yorkshire Run on the 29th September. The team is now 6 strong and spans 3 generations, as his Dad who is 73 is running with them this year. http://www.justgiving.com/teams/lewybody2013
The Social Care Institute for Excellence (SCIE) has produced several videos about caring for people with dementia at home and in care homes.
Become a Dementia Friends Champion and make a positive difference to people living with dementia in your community. Dementia Friends Champions are trained volunteers who encourage their family, friends and local community to learn a little more about dementia, and inspire them to help people with dementia live well. The next Dementia Friends’ Champions training […]
The National Liverpool Museums have created ‘The House of Memories’. Our CEO Jacqui Cannon recently met with a member of the project team and thought the project was a great contribution to the understanding of dementia and an important new resource for the people of the North West.
Although DLB has been “known about” as a diagnosis for almost 20 years, progress in spreading this knowledge has been hampered by it lacking official recognition in the formal systems which are used by healthcare and research funders. One of the two most influential systems is the Diagnostic and Statistical Manual of Mental Disorders (DSM) […]
Well done and thank you to Macushla Hughes for completing the Great London Run (14th July 2013) on such a hot day.
Social Care Institute for Excellence (SCIE) have launched a new section on working in partnership with carers on their Dementia Gateway. Recognising that the carer is very often the person who knows and understands the person with dementia best, this new section gives practical tips and advice to health and social care staff to support […]
On Wednesday 24 July, Ian Deeprose cycled a coastal route of 50 miles from Mount Tryon in Torquay to Start Point lighthouse and back, in memory of his mother, Rosemary Deeprose, who passed away at Mount Tryon Care Home on Boxing Day 2012, following a two year struggle against dementia with Lewy bodies. Two of […]
James Lind Alliance has published the top ten priorities from its Dementia Research Priorities-setting Programme. Thank you to everyone who contributed to this piece of work. The final top 10 priorities are: What are the most effective components of care that keep a person with dementia as independent as they can be at all stages […]
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