Sophie Ellis, a French teacher at Greenhead College in Huddersfield, is tackling her first ever half-marathon to raise awareness of Lewy body dementia, in memory of her grandad who had the disease. Sophie’s grandad Mike Ellis died in July aged 83, having been diagnosed with the condition 4 years previously, and having had dementia symptoms […]
Mark Clasper from Chester-le-Street is taking part in the Great North Run on 9th September on behalf of the Lewy Body Society. Mark’s father Ken was diagnosed with Lewy body dementia in 2003. Ken has since become an Ambassador for the Lewy Body Society and writes a blog about his experience of living with Lewy […]
The Great North Run is the biggest half marathon in the world and takes place on 9th September. We are delighted to have five runners tackling the 13.1 mile course and helping to raise money for the Lewy Body Society this year. The money they raise through sponsorship will help us to fund much-needed research […]
‘The Imagine Series’ is an new patient and carer involvement programme coordinated by VOICE and delivered in collaboration with the NIHR Innovation Observatory. The Innovation Observatory is a national centre funded by the Department of Health and aims to see what the management of health conditions could, and should, look like in the future. The […]
The society has funded a short film to promote awareness of Lewy body dementia. The film was produced by ITN Productions on behalf of the NHS alliance and was launched at their summit on the 6th December in London. The society was represented at the event by our President Prof Ian McKeith who features in […]
The Founder of The Lewy Body Society and Chair of The Trustees recently gave an interview to Elder about her mission to raise awareness of Lewy body dementia. Read the interview here: https://www.elder.org/feature/lewy-body-dementia-interview-ashley-bayston-lewy-body-society/
Dementia with Lewy bodies has a unique genetic profile, distinct from those of Alzheimer’s disease or Parkinson’s disease, according to the first large-scale genetic study of this common type of dementia. The genome-wide association study, conducted by a UCL-led collaboration of 65 academics in 11 countries and funded by Alzheimer’s Society and the Lewy Body […]
The Lewy Body Society is delighted to announce that it has been accepted as a member of the AMRC (Association of Medical Research Charities). This is a major milestone for us and we are very excited about the future. Thank you to all our supporters and fundraisers, we couldn’t do this without you.
New guidelines have been published on the clinical and physical indicators to help ensure patients with dementia with Lewy bodies get an accurate diagnosis and the best care possible. Scientists at Newcastle University have led an international team of experts to produce new recommendations to help diagnose the disease more accurately and improve management of […]
We are pleased to advise that Dr Marzena Kurzawa-Akanbi has been awarded the Michael J Fox Foundation research grant. The project is very much related to her PhD work which was funded by The Lewy Body Society. Marzena has provided an abstract of her proposal. Marzena Kurzawa-Akanbi, PhD Institute of Neuroscience, Newcastle University Project Title: […]
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