Vision and attention study – Cardiff University

Visual and attention impairments are common in Lewy body dementia. For example, some people may find it difficult to recognise objects, or may find that they are distracted during conversation. These problems with vision and attention can help to reliably distinguish Lewy body dementia from Alzheimer’s disease and similar disorders. Therefore, it is important that […]
Chris Leek’s £1m ‘Arch to Arc’ challenge

Every single one of our supporters who completes a physical challenge to raise money for Lewy body dementia research – whether it’s a 5k race, a mountain walk or a marathon – has our gratitude and admiration. We couldn’t have funded £1 million in research to improve the diagnosis and treatment of the disease without […]
Great Glen Way challenge

Margaret Taylor and five of her friends recently completed the Great Glen Way, a tough 73 mile walk across the Scottish Highlands from Fort William to Inverness. This is the inspiring story – in Margaret’s own words – of the motivation behind their challenge, the laughs along the way, and the fantastic support they received. […]
#7factsaboutLewy

This post pulls together into a thread a series of tweets and posts we shared on Twitter and Facebook during Dotty Days, our awareness week, using the hashtag #7factsaboutLewy. We hope they’ve helped to inform people about Lewy body dementia, the Lewy Body Society and our work. Day 1 of #7factsaboutLewy It is thought that […]
Dotty Days 2019 – Lewy body dementia awareness week

Dotty Days 2019 runs from 1-8 June this year and we wanted to let you know how you can get involved. You can buy your dotty pin badge, wristbands or ribbons on our online shop here or message us for a free fundraising pack. We really hope this year Dotty Days will be bigger […]
New clinical trial seeks participants

One of the Lewy Body Society’s main aims is to support research into Lewy body dementia, to help improve diagnosis and treatment of the disease in future. A new clinical trial started in 2018 at a number of different hospitals and research centres across the UK. If you or someone you know would like to […]
Invitation to research: Dementia with Lewy Bodies

We would like to invite you to take part in a new research study hosted by a research group based at Cardiff University. Since 2004 we have been interviewing people and collecting blood samples to try to understand more about how certain genes affect the likelihood of developing dementia. So far over 5000 people have […]
Improving diagnosis and management in dementia with Lewy bodies using the CPFT Research Database (CRATE)

Improving diagnosis and management in dementia with Lewy bodies using the CPFT Research Database (CRATE) We would like to draw your attention to the following study, funded by the Alzheimer’s Society, which proposes to use anonymised clinical data from people with dementia who were seen within Cambridgeshire and Peterborough NHS Foundation Trust (CPFT) from 2005 […]
Kara rounds off fundraising effort with London Marathon 2019

So many of our supporters choose to raise money for the Lewy Body Society because of their personal experience of the disease. This is the case for Kara Coles, who ran the London Marathon for the first time this year in a fantastic time of 5 hours and 29 minutes. Kara’s dad was diagnosed with […]
East Anglia Research

Are you or someone you care for living in East Anglia with a diagnosis of Lewy body dementia? Living with Lewy body dementia: Stories of Everyday Experience is a research study aimed at finding out your experiences of day to day living with Lewy body, so it can inform future nursing practices and care. Taking […]