ROBIN’S WISH: Poignant Robin Williams documentary released in the UK

The critically acclaimed documentary ROBIN’s WISH was released in the UK on 4th January 2021.  You can watch the trailer on YouTube here. There has been lots of media coverage around the film which has helped to raise awareness of LBD, including this article on Sky News. This interview with Susan Schneider Williams gives great insight into her mission to […]

Online poker star Lex Veldhuis raises over $80,000 for The Lewy Body Society

We were recently contacted by Lex Veldhuis, a professional poker player based in the Netherlands. Lex had recently lost his father to Lewy body dementia and wanted to support a charity that raised awareness and funded research into the disease. Along with PokerStars, he organised a charity run on his online stream and gathered donations […]

New research on hallucinations seeking participants

Study title: Investigating visual hallucinations in Lewy Body Dementia Contact Dr. David Schwartzman, Research Fellow at the Sackler Centre for Consciousness Science, University of Sussex. Participants are invited to take part in a study that aims to capture the precise visual properties of hallucinations that may occur as the result of Lewy Body Dementia. The […]

Final online event of 2020 and more in 2021…

Since the summer we have run more than half a dozen online events via Zoom and the level of engagement from our supporters has been fantastic.  We’ve held events focusing on the needs of carers, on the Admiral Nurse Dementia Helpline, on research, and on how to set up power of attorney.  Some of the […]

Christmas Carols from Drenagh

Update 14/12/2020: thank you to everyone who watched the concert ‘live’. If you missed it you can still watch via our YouTube channel here or find it on our Facebook page. Due to COVID-19 restrictions, the usual Christmas concert organised by harpist and pianist Les Magee at the beautiful Drenagh House in Northern Ireland cannot […]

New research may help diagnosis and treatment of Lewy body dementia 

Associate Professor Jay Amin spoke about his research on a Zoom webinar on Tuesday 1st December. The recording of the event is available on our YouTube channel here.  Two newly published research studies, led by Dr Jay Amin from the University of Southampton and supported by the Lewy Body Society and Alzheimer’s Research UK, have […]

Christmas cards now on sale!

Our popular Christmas cards are now available from our online shop.  Featuring original designs by the brilliant Louise at Design 10 Ltd, they are sure to be as popular as in previous years so please buy now to avoid disappointment. Each pack contains ten cards, featuring two designs, and costs £5.50 including UK postage.  

Webinar: What is Lewy body dementia really like?

Do you want to know what it feels like to live with Lewy body dementia? Do you understand the process for getting a diagnosis and where to look for support for yourself and family members? Have you thought about the future and how to keep living well for as long as possible?  Get answers to […]

Lewy Body Society welcomes two new Ambassadors

The Lewy Body Society, the charity dedicated to the second most common form of dementia among older people, has welcomed Chris Maddocks and John O’Doherty as its latest Ambassadors. The charity’s Ambassadors are usually people who have experience of Lewy body dementia and are willing to help promote and support its work promoting research into […]

New email newsletter – sign up now!

The Lewy Body Society is starting a new email newsletter and we would like to invite you to sign up here or using the simple form at the bottom right hand corner of this page. We will be sending regular updates (not too often, we promise) so that our community of supporters can keep up […]