New video answers frequently asked questions about The Lewy Body Society

New video answers frequently asked questions about The Lewy Body Society Chief Executive of The Lewy Body Society, Jacqui Cannon, has been spreading the word about our charity, the importance of a diagnosis, support for carers and those living with disease and much more. Frequently asked questions about Lewy body dementia and the history of […]

What is life like with sleep disturbances caused by Lewy body dementia?

What is life like with sleep disturbances caused by Lewy body dementia? Our consultant Admiral Nurse Rachel Thompson has been finding out what life is like with sleep disturbance caused by Lewy body dementia from married couple Melanie and Keith. Keith lives with Lewy body dementia and began experiencing sleep disturbances over 30 years ago. […]

Olivia’s Mount Kilimanjaro challenge

We would like to say a big well done and thank you to Olivia Roffe from Long Sutton in Lincolnshire who successfully climbed Mount Kilimanjaro, reaching the summit of the 5,895m high mountain, in Tanzania, after a week of hiking. She raised £2,300 to support our work in memory of her Grandad Brian Osborn who […]

Dementia Action Week 2022

This week (16-22 May) is Dementia Action Week, organised by Alzheimer’s Society, and the key message of this year’s campaign is: It’s not called getting old, it’s called getting ill. Every three minutes someone develops dementia, but right now, there are thousands of people who are in the dark about their diagnosis – they may […]

Thank you to our London Marathon team!

The London Marathon returned on 3rd October, with the first full-scale race for two years.  Around 8,000 runners took part, with many more running a virtual marathon in locations across the UK. We were only able to secure a single entry in the race this year, but we were delighted that it was taken up […]

Christmas cards now on sale

Our popular Christmas cards are now available from our online shop.  By purchasing these cards you will be supporting our efforts to raise awareness of Lewy body dementia, and fund research to help diagnose and treat the disease.  Featuring original designs by Design 10 Ltd, they are sure to be as popular as in previous […]

Research summary report: Multimodal Imaging in Lewy Body Disorders

We have received the following report from the University of Cambridge, which summarises the progress made following the award of a Lewy Body Society grant in 2015. There are some very positive outcomes, such as an improved understanding of imaging biomarkers in people living with Lewy body dementia, the recruitment of people living with LBD […]

Research update: support for people living with LBD and family carers

Study Title: The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners We have received an update from Newcastle University about a study that was supported by The Lewy Body Society, which we wanted to share with our supporters. Background Clinicians and people with lived […]

Lewy Body UK Conference

We were delighted to work with a team of academics – Rimona Weil (UCL), Claire O’Callaghan (The University of Sydney) & John-Paul Taylor (Newcastle University) – to host the Lewy Body UK 2021 Scientific Conference on 15th June. With 15 speakers in total, some from as far away as Australia and the USA, it was […]