A huge THANK YOU to the amazing Vicky and her friend Alison who completed the Exeter half marathon on three legs, dressed as Tweedle Dee & Tweedle Dum. Through this amazing feat they raised more than £15,500 for The Lewy Body Society. Vicky has chosen to support The Lewy Body Society as her husband Peter was […]
We have two online events taking place in November, with some fascinating speakers. They will both be taking place on Zoom and you can register now via Eventbrite. Mild Cognitive Impairment Monday 1st November, 11am During the last year, Dementia United in Greater Manchester supported the commissioning of the Neurology Academy’s Mild Cognitive Impairment masterclass. […]
We have been informed that from 1st December 2021 the fundraising platform Virgin Money Giving is closing, and no further donations will be accepted. This means it will no longer be an option for supporters who are raising funds for The Lewy Body Society. We continue to have accounts with Justgiving, Facebook donation, and you can donate […]
In this blog, Dr Clarissa Giebel, Senior Research Fellow at the University of Liverpool, shares her experience of running the Great North Run in support of The Lewy Body Society. Thank you Clarissa, and well done on also completing the London Marathon a few weeks later. After 18 months, finally setting my trainers onto race-pavement […]
In Lewy body dementia, problems such as hallucinations and delusions often arise. In some cases, these may present as ‘delusions of misidentification’, of which Capgras syndrome is one type. In Capgras syndrome, a person believes that a friend, spouse, parent, or other close family member has been replaced by an identical-looking impostor. This can be […]
Earlier this year we were contacted by a member of the Team RLS at RAF Akrotiri in Cyprus. They set themselves the challenge of running, walking and cycling the distance from RAF Brize Norton in Oxfordshire to RAF Akrotiri which is a total of 2,079 miles! One of the team members has a close relative […]
On Saturday 25th June, a team from Palo Alto Networks, a leading global cyber security company, completed their Hikers versus Bikers charity challenge, supported by their sponsor, Exclusive Networks. Nineteen walkers completed the Yorkshire Three Peaks, a 26 mile walk in the Yorkshire Dales over the summits of Pen-y-ghent, Whernside and Ingleborough. The “hares” team […]
We were delighted to work with a team of academics – Rimona Weil (UCL), Claire O’Callaghan (The University of Sydney) & John-Paul Taylor (Newcastle University) – to host the Lewy Body UK 2021 Scientific Conference on 15th June. With 15 speakers in total, some from as far away as Australia and the USA, it was […]
Hallucinations and changes in visual perception can be among the most challenging symptoms of Lewy body dementia, both for the person living with the disease and their family/caregivers. That’s why we’ve produced a new resource with information and tips about how to manage hallucinations, based on feedback from people living with LBD and their carers. […]
9th June 2021, 11am. Via Zoom Dotty Days, otherwise known as Lewy body awareness week, takes place from 6-13th June 2021. This year is extra special as it is our 15th birthday as a charity. We remain the only UK-based charity focused exclusively on Lewy body dementia. Join us for a virtual get together during […]
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