The Lewy Body Society

The Lewy Body Society is a wholly independent UK charity. It is not a satellite of any other organisation. It is one of the 2 Anglophone Lewy body charities in the world, the other one being the Lewy Body Dementia Association in the USA. We shared a stand with the LBDA at the AAIC in […]
Charity Football Match

Thank you to Charlotte-Rose and friends who raised £320.43 from the five aside football charity match today in aid of the Lewy Body Society
Skin test project to aid LBD diagnosis

Background Dementia with Lewy bodies (DLB) is the second most common type of neurodegenerative dementia after Alzheimer’s disease. It is associated with characteristic features such as the symptoms of Parkinson’s disease, visual hallucinations and fluctuating cognitive impairment. The diagnosis of DLB can be difficult. Currently there is a scan that helps to diagnose DLB, but […]
South Downs Challenge

Jake Kendall decided to sign up for the South Downs Challenge to raise money for the Lewy Body Scoiety after his grandpa, John, was diagnosed with DLB in March this year. Here is Jake’s story….” I knew it would be incredibly difficult – a 100-mile mountain bike cycle taking in the length of the South […]
The Lewy Body Society

The Lewy Body Society was established with the dual mission of supporting research into dementia with Lewy bodies and to raise awareness . For that reason the Society is information, rather than carer support driven. We have a helpline which is answered by nurses trained in dementia and will do our best to provide expert […]
Virgin Money London Marathon 2016

LONDON MARATHON RAFFLE 2016 The trustees would like to say a massive thank you to all our fantastic supporters who put their name forward to be included in the raffle for the one place we had for the 2016 event. Unfortunately we only had the one place and the name that was drawn was Rhian […]
LBS President Honoured

On 19 July the LBS’ President and co-founder, Professor Ian McKeith, will be honoured with a Lifetime Achievement Award at the ( US )Alzheimer’s Association International Conference in Washington DC. Professor McKeith has long been at the forefront of Lewy body dementia research and has an international reputation as a leading expert in the field. […]
The Gift of Time: Living with my husband and Diffuse Lewy Body Disease

The Gift of Time is a moving and informative new book written by a local minister, the Revd Canon Pat Prestney, which tells a tale of love, hope, faith and a cocktail of medication that truly gave a dying man and his family the precious gift of time. The Gift of Time tells the story […]
Open Gardens Event in memory of Doreen Lewsey

A massive “Thank you” to Roger Lewsey who organised an open garden event to raise funds for the society and added “it was well attended and there was a lot of interest in the fairy garden set aside in memory of Doreen and DLB”.
Well done to Frances Cliff – Great North Swim 2015 between 12/06/2015 and 14/06/2015
Well done and a massive “Thank You” to Frances Cliff for taking part in the Great North Swim 2015 between 12/06/2015 and 14/06/2015. “Frances said she took part …on behalf of my dear step father Nick who is now receiving 24 hour care for dementia with Lewy bodies. Also to show support on behalf of […]