The Lewy Body Society was established with the dual mission of supporting research into dementia with Lewy bodies and to raise awareness . For that reason the Society is information, rather than carer support driven. We have a helpline which is answered by nurses trained in dementia and will do our best to provide expert answers to enquiries made by people affected by both dementia with Lewy bodies and the dementia associated with Parkinson’s disease. The Society feels that we are supporting patients and their families by providing information.
From time to time we are contacted by people who have formed informal, ad hoc groups and we are happy to provide information and other materials to those who wish to form support groups in their communities. As an all volunteer organisation we are extremely grateful for such help.