Dementia: “It isn’t always memory and it isn’t just memory”

We continue to highlight that Lewy body dementia is the second most common progressive dementia, affecting over 130,000 people in the UK (one in six people with dementia). We work to correct the widespread public misconception that ‘dementia = Alzheimer’s = memory loss’ which delays help for people with Lewy body dementia symptoms: visual hallucinations, […]

7 May – All Party Parliamentary Group on Dementia

We attended the All Party Parliamentary Group on Dementia’s meeting on Wednesday 7 May to hear The Rt Hon Jeremy Hunt MP, Secretary of State for Health describe plans to move work on dementia forward after the end of the National Dementia Strategy 2009-14. He suggested the work would proceed with a refreshed ‘Prime Minister’s […]

Information for dementia carers – can you help?

The National Institute for Health and Care Excellence (NICE) have asked the Lewy Body Society for input from ‘experts by experience’ to ensure new information on the web to support the Dementia Quality Standard is relevant and helpful to dementia carers. NICE aims to explain how carers can use the Dementia Quality Standard to ensure […]

Dementia Friends Champions training

Become a Dementia Friends Champion and make a positive difference to people living with dementia in your community. Dementia Friends Champions are trained volunteers who encourage their family, friends and local community to learn a little more about dementia, and inspire them to help people with dementia live well. The next Dementia Friends’ Champions training […]

James Lind Alliance publishes dementia research priorities

James Lind Alliance has published the top ten priorities from its Dementia Research Priorities-setting Programme. Thank you to everyone who contributed to this piece of work. The final top 10 priorities are: What are the most effective components of care that keep a person with dementia as independent as they can be at all stages […]

Falls – information for people affected by Lewy body dementias

LBS took the opportunity of the annual Falls Awareness Week co-ordinated by Age UK to share information about falls caused by Lewy body dementias (LBDs). Repeated falls are common for people LBDs, either dementia with Lewy bodies or Parkinson’s dementia. Falling can be a very early symptom of dementia with Lewy bodies (DLB) and may […]

Polka Dot-ty days in June

Help raise Lewy body a-wearness without getting cold and wet! To celebrate the Lewy Body Society’s 9th birthday and in honour of the Society’s much loved Patron, June Brown, we have designated the whole month of June to raising awareness of Lewy body dementia. To download the package just click the link. What’s it L […]

New online service to find and comment on care

[Source: Care Industry News] The NHS has launched new online information profiles that will help people to choose, compare and comment on care homes and other care services. The new profiles, part of the NHS Choices website, will create the most definitive online source of information on care services, including: essential information from every registered […]

Life Changes Trust – new dementia charity – launches in Scotland

Life Changes Trust (LCT), a new independent charity in Scotland, is set to have a major impact on the lives of some of the most vulnerable people in the country. Over the next ten years, the Trust will invest £50 million to benefit individuals and communities by nurturing initiatives and influencing policy. The Trust will […]