On 14th October 20202 The Lewy Body Society will unveil a 1600-metre scarf around the entire circumference of the Royal Albert Hall in London – five times – to show support for those living with Lewy body dementia. More than 100 volunteers will be attending to help the dementia charity wrap the mile long scarf […]
We are looking for a company to work with to design and develop a new website. Our current website (www.lewybody.org) was created in 2015 and we believe a new and improved website will help us reach more people affected by Lewy body dementia, and more professionals and researchers, as well as helping them engage more […]
We are pleased to confirm the new date for A Scarf for Lewy, which was postponed due to the death of Her Majesty Queen Elizabeth II. The event will now take place on Friday 14th October 2022, at the Royal Albert Hall. We will be wrapping a giant scarf FIVE TIMES around this iconic building […]
We are deeply saddened to hear the news of the death of Her Majesty Queen Elizabeth II. Our thoughts are with the Royal Family and all those around the world who will mourn her loss. Following this news, and after discussions with the Royal Albert Hall, we have decided to postpone the A Scarf for […]
We are delighted to announce that along with international partners we have launched an umbrella organisation called Lewy Body International. The aim of the group is to promote awareness and knowledge of Lewy body dementia globally through a network of dedicated LBD organisations. When The Lewy Body Society was established in 2006 we were the […]
After the success of the first ever Lewy Body MasterClass last November, we are delighted to be supporting the Neurology Academy to run another session, which will take place in Sheffield on 16/17 November 2022. You can find out more and book your place here. We are running a competition with the Neurology Academy to […]
PLEASE NOTE THIS EVENT HAS BEEN POSTPONED UNTIL 14TH OCTOBER Our awareness raising event ‘A Scarf for Lewy’ is now getting closer and we are delighted with the response and the level of support so far. In case you’ve missed it, we’re going to be wrapping a huge scarf around the Royal Albert Hall on […]
In a personal and moving blog, Nick Aldworth has written about losing his dad Richard to Lewy body dementia two years ago and the impact it had on him, his mum and his family. I faced a bit of a personal battle during Lewy Body Dementia Awareness Week. We lost my Dad – Richard Aldworth […]
Thank you to Kim Robinson and her family for sharing their experience of caring during the Covid-19 pandemic. As part of Carers Week, Kim attended an event at the Houses of Parliment and spoke to MPs and Peers about her caring role and Lewy body dementia. I care for my dad who was diagnosed with […]
Thank you to Heather Ritchie for sharing her story as part of the Carers Week report. Read the report and recommendations here. Carers Week charities are calling for an urgent 12-month plan of targeted support for unpaid carers, as many struggle with the ongoing impact, as well as the legacy, of the pandemic, together with […]
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