ALCOVE is a project involving 19 countries across Europe that aims to contribute to the wellbeing of people with dementia, by improving knowledge and developing preventive and care recommendations that facilitate policy and health care decision making in European countries. It is working on four main topics: How to improve data to have a better […]
You may have seen in the news that comedians Meera Syal and Jo Brand have signed up to become‘Dementia Friends’. The scheme aims to reach one million people in England by 2015 with free information sessions exploring what it is like to live with dementia. We will be working to ensure that the scheme gives […]
The Lewy Body Society does not run any local support groups, but if you would like to be involved in supporting people with dementia with Lewy bodies (DLB) or Parkinson’s dementia (PDD) in your area, please get in touch. For information on dementia services in your area, try Dementia web which is gathering together details […]
On 10 January 2013, Paul Burstow MP (former Minister of State for Care Services) led a debate on dementia, which starts at Column 515 (1.23pm) in Hansard, the Parliamentary record.
Angela Rippon chairs the Prime Minister’s Dementia Challenge Champion Group on Dementia Friendly Communities. The 34-strong Champion Group includes representatives from a wide range of services including banking, retail, leisure, police and fire services who aim to lead the movement to tackle the isolation felt by people with dementia and their carers. Click here to […]
This autumn we played an active part in several events to raise awareness of dementia with Lewy bodies and Parkinson’s dementia. Following our question at the Westminster Social Policy Forum on the ‘Future for dementia care’ about what should be covered in the training for the new 1,000,000 Dementia Friends — given the range of […]
If you have experience of dementia with Lewy bodies or Parkinson’s dementia – either as someone with the condition or a carer – and you would be willing to share your experiences, through an article in the media, a quotation in a report or talking with others in a similar situation, we’d very much like […]
The Lewy Body Society has become a member of the Dementia Action Alliance, a network of around 170 organisations, from all sectors, dedicated to transforming the quality of life of people affected by dementia. All members of the Alliance have to write a pledge that states what action they will be taking between now and […]
Dementia campaigner, Tommy Whitelaw, is collecting letters from carers about what life is like caring for someone with dementia – the struggles and the joys – which he draws from when raising awareness through the media, talking with politicians and seeking to change NHS services and support for the better. You can follow Tommy’s campaign […]
The Lewy Body Society/Parkinson’s UK comment (see below) has been published on the English Forums on Ageing website. The Lewy Body Society and Parkinson’s UK response to Government plans unveiled on Thursday 8 November to cut dementia diagnosis times and raise dementia diagnosis rates: While the charities welcome the proposed early dementia assessment service, they […]
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