Lewy Body UK conference – 15th June 2021

We are delighted to be working with our partners in the academic community to host a scientific conference focusing on all the latest Lewy body dementia research, and marking our 15th year as a charity. The conference is open to everone and is free to attend. However for people living with Lewy body dementia, their […]

Forthcoming online events – April 2021

We are pleased to announce a further round of online events that are now available for booking. If you have any problems booking or have suggestions for future events, please send us an email. Monday 12th April 11am – A talk with Karen Meenan, Global Brain Health Institute & Lewy Body Ireland Find out about […]

Celebrating 15 years of The Lewy Body Society

This year marks 15 years since The Lewy Body Society was founded, and we’ve updated our logo to mark this milestone. We’ll be using the anniversary as a focus for our work this year, as we look ahead to the future, develop new plans and focus on our mission of ‘shining a light on Lewy […]

Would you like to run the Virgin Money London Marathon 2021?

The next Virgin Money London Marathon will take place on Sunday 3rd October 2021. This year we are entitled to a single entry and we would like to invite applications from anyone interested in taking up that place and supporting Lewy body dementia research. We ask that you raise a minimum of £1000 and we […]

The Lewy Body Society looks ahead to 2021

Here at the Lewy Body Society, we’ve been looking forward to 2021 for a while. That’s because it will be our 15th ‘birthday’ as a charity.  We remain the only UK charity dedicated exclusively to Lewy body dementia, and we will mark the year with an impact report and a new fundraising appeal to help […]

Christmas Day swim in memory of Tim Malyon

We would like to offer our sincere thanks to Sofia, Finn and a large group of their friends and family who braved the cold Exmouth sea on Christmas Day to remember their dad Tim and raise funds for The Lewy Body Society.  We are very impressed by your bravery and grateful for the donations which […]

Lewy Body Dementia Survival & Me

Kevin Quaid author of this book was diagnosed with Lewy body dementia when he was 53 years old having been diagnosed with Parkinson’s Disease two years earlier. This book is written from a patient’s point of view but also the affect on family.

ROBIN’S WISH: Poignant Robin Williams documentary released in the UK

The critically acclaimed documentary ROBIN’s WISH was released in the UK on 4th January 2021.  You can watch the trailer on YouTube here. There has been lots of media coverage around the film which has helped to raise awareness of LBD, including this article on Sky News. This interview with Susan Schneider Williams gives great insight into her mission to […]

Online poker star Lex Veldhuis raises over $80,000 for The Lewy Body Society

We were recently contacted by Lex Veldhuis, a professional poker player based in the Netherlands. Lex had recently lost his father to Lewy body dementia and wanted to support a charity that raised awareness and funded research into the disease. Along with PokerStars, he organised a charity run on his online stream and gathered donations […]

New research on hallucinations seeking participants

Study title: Investigating visual hallucinations in Lewy Body Dementia Contact Dr. David Schwartzman, Research Fellow at the Sackler Centre for Consciousness Science, University of Sussex. Participants are invited to take part in a study that aims to capture the precise visual properties of hallucinations that may occur as the result of Lewy Body Dementia. The […]