New study seeks carers to complete an online survey

Please see below information about a University of Reading study which focuses on informal (i.e. unpaid) caregivers of individuals with parkinsonism symptoms. They are building an online intervention to support these caregivers, but first need to garner their opinions and feedback about the website’s features. Who can take part? Do you provide unpaid care to […]

Registration now open for ILBDC2022

You can now register for the International Lewy Body Dementia Conference 2022!  It will be a great chance to meet other people affected by the disease and hear about the latest developments in research. The ‘Living with Lewy’ strand, aimed at people living with dementia and carers, is free to attend and takes place on […]

Volunteers required for new Lewy body dementia study

Markers of Progression in Dementia with Lewy Bodies Researchers at University College London are investigating markers of progression in DLB. The aim is identify blood tests and brain markers that can help with monitoring progression. This will help make trials of new treatments more effective. What will it involve? Two visits to University College London: […]

Grant Round 2022

We are the only charity dedicated solely to Lewy body dementia in the UK. Through our application and review process we aim to fund the highest quality research so that we can make a real difference to the lives of people with LBD. We are pleased to announce that the call for applications to our […]

November events now open for registration

We have two online events taking place in November, with some fascinating speakers.  They will both be taking place on Zoom and you can register now via Eventbrite. Mild Cognitive Impairment Monday 1st November, 11am During the last year, Dementia United in Greater Manchester supported the commissioning of the Neurology Academy’s Mild Cognitive Impairment masterclass. […]

Lewy Body Academy to transform knowledge of Lewy body dementia

We are delighted to be a partner in the newly formed Lewy Body Academy. The Academy builds upon the successful model of the Neurology Academy, and seeks to support professionals with knowledge and expertise about Lewy body dementia. It is led by Professor Iracema Leroi, Associate Professor of Geriatric Psychiatry at Trinity College Dublin. Next month the first Lewy […]

Capgras syndrome in Lewy body dementia – webinar recording now available

In Lewy body dementia, problems such as hallucinations and delusions often arise. In some cases, these may present as ‘delusions of misidentification’, of which Capgras syndrome is one type. In Capgras syndrome, a person believes that a friend, spouse, parent, or other close family member has been replaced by an identical-looking impostor. This can be […]

Research summary report: Multimodal Imaging in Lewy Body Disorders

We have received the following report from the University of Cambridge, which summarises the progress made following the award of a Lewy Body Society grant in 2015. There are some very positive outcomes, such as an improved understanding of imaging biomarkers in people living with Lewy body dementia, the recruitment of people living with LBD […]

Research update: support for people living with LBD and family carers

Study Title: The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners We have received an update from Newcastle University about a study that was supported by The Lewy Body Society, which we wanted to share with our supporters. Background Clinicians and people with lived […]