Support our Lewy List demands for action on World Lewy Body Day

CEO of Lewy Body Society Jacqui Cannon sitting in front of a screen showing the Lewy List petition page

The Lewy Body Society is calling on the government to improve the lives of 100,000 people with Lewy body dementia in the UK, in the face of the global dementia health crisis. Affecting 11 million people worldwide, the number of individuals with this Lewy body dementia is predicted to rise dramatically as life expectancy increases […]

Lessons I have learned as a Lewy body dementia carer

Becoming an unpaid carer when your partner or parent is diagnosed with dementia is hard – it is full-time (and then some) job for which very few are remotely qualified when they are thrust into the role. It is even harder when they have a much-misunderstood form of the condition, such as Lewy body dementia. […]

Capgras syndrome: my partner thought I was an imposter

Imagine looking at your loving partner of many years and suddenly having the creeping suspicion that it was not, in fact, your husband or wife, but someone pretending to be them and, worse still, no one else believes you. Becoming convinced that the person who loves you most and who is taking care of you […]

The Miners dig deep to reach Lewy Body Society fundraising goal

John Mills and David Watts in the stands at a recent home game for Maltby Main FC. Both are wearing big coats and are smiling

Football fans have their eyes on a charity goal inspired by one of their own. Supporters of Maltby Main FC are raising money for Lewy Body Society after one of the club’s most faithful servants was diagnosed with the disease. Lewy body dementia is the second most common form of dementia in older people but […]

Help us mark the second annual World Lewy Body Day!

Graphic with a picture of the Earth with World Lewy Body Day in black bold text

Organisations from eleven countries, including Lewy Body Society in the UK, will collectively celebrate the second annual World Lewy Body Dementia Day on Tuesday, January 28, the birthday of renowned neurologist and neuropathologist Dr Fritz Jacob Heinrich Lewy (1885-1950) for whom the aggregations of misfolded alpha-synuclein proteins in the brain, now known as Lewy Bodies, […]

Five years of LBS funding UK’s first LBD Consultant Admiral Nurse

Lewy Body Society is celebrating its five years of funding the UK’s first Consultant Admiral Nurse for Lewy body dementia. Admiral Nurses offer support to people with dementia, their families and carers, and their expertise to medical professionals. We have fully funded Rachel Thompson’s role at Dementia UK to help patients and their families navigate their specific […]

Calling for early diagnosis and quality support for LBD on World Alzheimer’s Day

As we mark World Alzheimer’s Day on September 21, the Lewy Body Society is calling for greater awareness of Lewy body dementia (LBD)—a form of dementia that many have never heard of but affects thousands of families across the UK.  While Alzheimer’s disease is the most well-known form of dementia, LBD remains significantly under-recognised, leading […]

Family of four set to run half marathon for grandad with Lewy body dementia

A Teesside family of four are putting their best foot forward in a fundraising mission for The Lewy Body Society.  The Beckett family, mum Sarah, dad Clive and siblings Hannah and Alfie, will all be taking on the challenge of the Great North Run after Sarah’s dad was diagnosed with Lewy body dementia back in […]

A Scarf For Lewy 2024 – Manchester

On 17th October 2024 we are holding an event with a difference… We are going to have an event at Central Hall in Central Buildings,Oldham Street Manchester, M1 1JQ Register to attend the event: https://www.trybooking.com/uk/CZTD All to raise awareness of Lewy body dementia, the second most common type of dementia in older people. Lewy body dementia […]