New book to help children understand Lewy body dementia

What are Lewy bodies? is a new book by award-winning author Alex Winstanley aimed at children aged 5-11.  It explains Lewy body dementia in a fun and accessible way, to help the younger generation understand this common but little-known disease. Lewy body dementia is the second most common type of dementia in older people and is […]

Lewy Body Dementia Survival & Me

Kevin Quaid author of this book was diagnosed with Lewy body dementia when he was 53 years old having been diagnosed with Parkinson’s Disease two years earlier. This book is written from a patient’s point of view but also the affect on family.

Updated guide to Lewy body dementia now available

We’ve given our popular publication A guide to Lewy body dementia an update and refresh.  This booklet provides an introduction to the disease including what you might expect when seeking a diagnosis and what treatments are available. It also offers advice about planning ahead and looking after yourself as a carer.  Many people have told […]

The Gift of Time: Living with my husband and Diffuse Lewy Body Disease

The Gift of Time is a moving and informative new book written by a local minister, the Revd Canon Pat Prestney, which tells a tale of love, hope, faith and a cocktail of medication that truly gave a dying man and his family the precious gift of time. The Gift of Time tells the story […]

Carers Guide: Living with Lewys

Although this book has be around for several years and we list it in our Books Section. We thought it worth highlighting again, especially for new carers. If anyone has read this and can contribute a review. Please mail via our Contact Form.

New guide to Lewy body dementias

If you are looking for a guide to Lewy body dementias, Dementia with Lewy Bodies and Parkinson’s Disease Dementia: Patient, Family, and Clinician Working Together for Better Outcomes written by Dr. J. Eric Ahlskog may be of interest. In it, Dr Ahlskog draws on 30 years of clinical and research work at the Mayo Clinic […]

Living with Lewy body dementia

Written in 2012 by physiotherapist Judy Towne Jennings, this comprehensive guide benefits from professional and personal experience of Dementia with Lewy Bodies. Judy writes from personal experience of caring for her husband Dean and her many years of treating movement disorders. If you would be interested in reviewing this brave and unflinching account of the […]

My Life By Rita Heap

Rita Heap, died of LBD on 15th October 2012. During her first year in residential care she wrote her life story and copies were printed off for relatives and friends – it was particularly useful for those caring for her to understand the sort of person she was before the dementia took hold. The book […]

Over Streams and Squirrel Woods by Alys Williams

Jenny Thomas wanted to write about a person who has a disease which slowly destroys the ability to communicate or recognise anyone, causes the loss of bodily functions, forces dependency and dehumanises the sufferer – as Lewy body dementia did to her mother. So during the six years that they struggled with the disease, Jenny […]