Kevin Quaid author of this book was diagnosed with Lewy body dementia when he was 53 years old having been diagnosed with Parkinson’s Disease two years earlier. This book is written from a patient’s point of view but also the …
ROBIN’S WISH: Poignant Robin Williams documentary released in the UK
The critically acclaimed documentary ROBIN’s WISH was released in the UK on 4th January 2021. You can watch the trailer on YouTube here. There has been lots of media coverage around the film which has helped to raise awareness of …
Online poker star Lex Veldhuis raises over $80,000 for The Lewy Body Society
We were recently contacted by Lex Veldhuis, a professional poker player based in the Netherlands. Lex had recently lost his father to Lewy body dementia and wanted to support a charity that raised awareness and funded research into the disease. …
New research on hallucinations seeking participants
Study title: Investigating visual hallucinations in Lewy Body Dementia Contact Dr. David Schwartzman, Research Fellow at the Sackler Centre for Consciousness Science, University of Sussex. Participants are invited to take part in a study that aims to capture the precise …
Final online event of 2020 and more in 2021…
Since the summer we have run more than half a dozen online events via Zoom and the level of engagement from our supporters has been fantastic. We’ve held events focusing on the needs of carers, on the Admiral Nurse Dementia …
Christmas Carols from Drenagh
Update 14/12/2020: thank you to everyone who watched the concert ‘live’. If you missed it you can still watch via our YouTube channel here or find it on our Facebook page. Due to COVID-19 restrictions, the usual Christmas concert organised …
New research may help diagnosis and treatment of Lewy body dementia
Associate Professor Jay Amin spoke about his research on a Zoom webinar on Tuesday 1st December. The recording of the event is available on our YouTube channel here. Two newly published research studies, led by Dr Jay Amin from the …
Christmas cards now on sale!
Our popular Christmas cards are now available from our online shop. Featuring original designs by the brilliant Louise at Design 10 Ltd, they are sure to be as popular as in previous years so please buy now to avoid disappointment. …
Webinar: What is Lewy body dementia really like?
Do you want to know what it feels like to live with Lewy body dementia? Do you understand the process for getting a diagnosis and where to look for support for yourself and family members? Have you thought about the …