A Scarf For Lewy 2024 – Manchester

On 17th October 2024 we are holding an event with a difference… We are going to have an event at Central Hall in Central Buildings,Oldham Street Manchester, M1 1JQ Register to attend the event: https://www.trybooking.com/uk/CZTD All to raise awareness of Lewy body dementia, the second most common type of dementia in older people. Lewy body dementia […]

World Lewy Body Day

Together with other Lewy body organisations on the first World Lewy Body Day (Sunday, January 28), the Lewy Body Society is shining a light on the most common disease you have never heard of. We will be holding events in Westminster and Newcastle and posting on our social media channels.      


Until the death of Robin Williams, not many people had heard of #LewyBody Dementia. To raise awareness of the condition, ‘Living with Lewy’ is a two-episode podcast with The Lewy Body Society with support from The National Lottery Community Fund. You can listen now on out website or on the ITN Business Hub: https://business.itn.co.uk/podcasts/living-with-lewy/…

A Scarf For Lewy Belfast

A Scarf For Lewy Belfast On 17th October we held our long-awaited awareness-raising event in Belfast, which was the second time we have wrapped ‘A Scarf for Lewy’ around a major landmark building.    The mile-long scarf which was lovingly knitted by volunteers last year and wrapped around the Royal Albert Hall in London was transported across the […]

Tender for new website

We are looking for a company to work with to design and develop a new website.  Our current website (www.lewybody.org) was created in 2015 and we believe a new and improved website will help us reach more people affected by Lewy body dementia, and more professionals and researchers, as well as helping them engage more […]

A Scarf for Lewy – new date confirmed

We are pleased to confirm the new date for A Scarf for Lewy, which was postponed due to the death of Her Majesty Queen Elizabeth II. The event will now take place on Friday 14th October 2022, at the Royal Albert Hall. We will be wrapping a giant scarf FIVE TIMES around this iconic building […]

Case study – Kim’s story

Thank you to Kim Robinson and her family for sharing their experience of caring during the Covid-19 pandemic.  As part of Carers Week, Kim attended an event at the Houses of Parliment and spoke to MPs and Peers about her caring role and Lewy body dementia.  I care for my dad who was diagnosed with […]

Case study – Heather’s story

Thank you to Heather Ritchie for sharing her story as part of the Carers Week report. Read the report and recommendations here. Carers Week charities are calling for an urgent 12-month plan of targeted support for unpaid carers, as many struggle with the ongoing impact, as well as the legacy, of the pandemic, together with […]