‘The Imagine Series’ is an new patient and carer involvement programme coordinated by VOICE and delivered in collaboration with the NIHR Innovation Observatory. The Innovation Observatory is a national centre funded by the Department of Health and aims to see …
Dementia with Lewy bodies: unique genetic profile identified
Dementia with Lewy bodies has a unique genetic profile, distinct from those of Alzheimer’s disease or Parkinson’s disease, according to the first large-scale genetic study of this common type of dementia. The genome-wide association study, conducted by a UCL-led collaboration …
AMRC Membership
The Lewy Body Society is delighted to announce that it has been accepted as a member of the AMRC (Association of Medical Research Charities). This is a major milestone for us and we are very excited about the future. Thank …
The Angela Project
A NATIONAL SURVEY FOR YOUNG ONSET DEMENTIA Research Study – The Angela Project: Improving diagnosis and post-diagnostic support for younger people with dementia, families and supporters. Please join us to improve services and support for younger people living with dementia, …
New international guidelines to identify dementia with Lewy bodies
New guidelines have been published on the clinical and physical indicators to help ensure patients with dementia with Lewy bodies get an accurate diagnosis and the best care possible. Scientists at Newcastle University have led an international team of experts …
Michael J Fox Foundation Research Grant
We are pleased to advise that Dr Marzena Kurzawa-Akanbi has been awarded the Michael J Fox Foundation research grant. The project is very much related to her PhD work which was funded by The Lewy Body Society. Marzena has provided …
Feasibility and acceptability of a dementia with Lewy bodies support and information group
Alison Killen writes…. I am a research assistant working at Newcastle University and I am very pleased to introduce a new study which the Lewy Body Society have kindly agreed to support. There is a lot of work ongoing to …
Dementia Research – East Anglia
Allison Bentley is a Dementia Research Nurse working in Cambridge, who has developed a special interest in the physical (autonomic) symptoms associated with Lewy body disease. Lewy body disease can sometimes affect a person’s autonomic (involuntary) nervous system, which leads …
Kate Riddick – Sponsored Walk September 2016
Thank you to Kate Riddick who together with her parents has completed a sponsored walk to raise funds for The Lewy Body Society, Kate’s Grannie has DLB. The following was written by Kate:- “We set off early up the Northumberland …