RVT-101 for Dementia with Lewy Bodies (HEADWAY-DLB)

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Axovant Sciences, have announced their decision to discontinue the HEADWAY-DLB study. The Lewy Body Society is obviously very disappointed at this news and especially for those of our supporters who took part in the trials. The project tested the efficacy …

Dementia with Lewy bodies: unique genetic profile identified

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Dementia with Lewy bodies has a unique genetic profile, distinct from those of Alzheimer’s disease or Parkinson’s disease, according to the first large-scale genetic study of this common type of dementia. The genome-wide association study, conducted by a UCL-led collaboration …

AMRC Membership

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The Lewy Body Society is delighted to announce that it has been accepted as a member of the AMRC (Association of Medical Research Charities). This is a major milestone for us and we are very excited about the future. Thank …

The Dementia 2020 Citizens’ Panel for England

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The Dementia 2020 Citizens’ Panel for England This post is on behalf of ORS – Opinion Research Services Have you, or has somebody close to you, been diagnosed with dementia in the last two years? If so, we’d really like …

Postal Questionnaire Study – University of Manchester

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You are invited to take part in a questionnaire study with the University of Manchester. The study focuses on exploring personal experiences and feelings of life partners and spouses who are providing care and support to their loved ones with …

The Angela Project

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A NATIONAL SURVEY FOR YOUNG ONSET DEMENTIA Research Study – The Angela Project: Improving diagnosis and post-diagnostic support for younger people with dementia, families and supporters. Please join us to improve services and support for younger people living with dementia, …

New international guidelines to identify dementia with Lewy bodies

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New guidelines have been published on the clinical and physical indicators to help ensure patients with dementia with Lewy bodies get an accurate diagnosis and the best care possible. Scientists at Newcastle University have led an international team of experts …

Michael J Fox Foundation Research Grant

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We are pleased to advise that Dr Marzena Kurzawa-Akanbi has been awarded the Michael J Fox Foundation research grant. The project is very much related to her PhD work which was funded by The Lewy Body Society. Marzena has provided …