Parkinson’s UK

Helpline: 0808 800 0303

As parkinsonism is a core feature of dementia with Lewy bodies (DLB), many people with DLB are misdiagnosed as having Parkinson’s Disease. Parkinson’s UK offers support for patients and carers, including excellent advice on coping with daily activities. The charity has a range of information on Lewy body dementias and, through a partnership arrangement with the Lewy Body Society, answers our helpline calls.


The Alzheimer’s Society

020 7423 3500
Helpline: 0300 222 11 22

The Alzheimer’s Society provides a wide range of information on all aspects of dementia, including caring for someone with dementia. They also provide a range of local services.


Alzheimer Scotland

0131 243 1453
24 hour Helpline: 0808 808 3000
email Alzheimer Scotland

Alzheimer Scotland is the leading dementia organisation in Scotland. It campaigns for the rights of people with dementia and their families and provides an extensive range of support services.


Alzheimer’s Disease International

020 7981 0880

Alzheimer’s Disease International (ADI) works locally, by empowering Alzheimer associations in each country to promote and offer care and support for people with dementia and their carers, while working globally to focus attention on dementia.


Dementia UK

Dementia UK is a national charity, committed to improving quality of life for all people affected by dementia. The charity provides Admiral Nurses, specialist dementia nurses who provide practical and emotional support to family carers of people with dementia and Admiral Nursing DIRECT, a telephone and email helpline run by experienced Admiral Nurses. Call 0845 257 9406 or email


Alzheimer’s Research UK

0300 111 5555

The UK’s leading research charity for dementia, dedicated to funding scientific studies to find ways to treat, cure or prevent all dementias. They provide a booklet on dementia with Lewy bodies.


Lewy Body Dementia Association

The very informative website of our associate organisation in the USA. The Lewy Body Dementia Association (LBDA) is a not-for-profit organisation dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association’s purposes are charitable, educational, and scientific.


Giving Voice for People with Dementia

The Royal College of Speech and Language Therapists (RCSLT) is running the Giving Voice for People with Dementia campaign to improve the quality of care received by people with dementia, their families and their carers. People with dementia and their carers have a range of needs in communication, safe eating and drinking which should be met by individuals with the appropriate clinical expertise or those who have been trained by people with that expertise.


Alzheimer Europe

Based in Luxembourg, this is a federation of national Alzheimer’s societies which aims to raise awareness of Alzheimer’s disease and other dementias through cooperative effort. The website also offers useful tips for carers.