Dotty Days 2019 – thank you

Dotty Days, our Lewy body dementia awareness week, is over for another year.  We would like to thank everyone who participated by wearing dotty clothes and accessories, sharing one of our social media posts, purchasing some of our merchandise and having conversations up and down the country about Lewy body dementia.

We’re still adding up the figures, but we’re sure that this year (marking the charity’s 13th birthday) was the biggest yet in terms of reach and fundraising efforts. If you search the hashtag #DottyDays on either Twitter or Facebook, you’ll see all the posts and discussions about the disease itself, plus research, support and events, and involving patients, carers and professionals.

As well as funding clinical research to improve the diagnosis and treatment of Lewy body dementia, one of our main objectives as an organisation is to raise awareness of the disease. So often people tell us that no-one has heard of it (even health professionals) and that it upsets them that Alzheimer’s is used as shorthand for dementia, when the different sub-types of the disease are so different.

So as part of Dotty Days, we decided to share some key facts about Lewy body dementia. Using the ‘hashtag’ #7factsaboutLewy, we shared a series of posts throughout the week, and you can read them all in one place here.  The aim was for other people to share them, and person by person we would spread knowledge about Lewy body dementia.

Some of the other highlights of the week included seeing many pictures of cute dogs in spotty scarves, and hearing about amazing fundraising adventures like Margaret and her friends who walked over 70 miles on the Great Glen Way; Carol, Philippa and their friends who are planning another New Years Day dip next year on Paignton beach; and Chris Leek who is hoping to raise £1 million doing the ultra-tough endurance challenge Arch2Arch, a 289-mile triathlon from London to Paris. We are amazed at the challenges that you all come up with, and are so grateful for all your support in helping us fund research into Lewy body dementia.

Finally, we want to say a huge thank you to the team at Showtime Challenge 48-hour Musicals.  Not only have they made us the charity partner for this year’s performance of Singin’ In the Rain on 13th October, but since the auditions took place during Dotty Days they fully embraced our dotty theme throughout the auditions.  The show is sure to be fantastic and we’re delighted to be a part of it. You can find out more and buy your tickets to the show, which will be hosted by Julian Clary, here.

Thank you, from all the team at the Lewy Body Society