Seeking ‘Experts by Experience’

If you have experience of dementia with Lewy bodies or Parkinson’s dementia – either as someone with the condition or a carer – and you would be willing to share your experiences, through an article in the media, a quotation in a report or talking with others in a similar situation, we’d very much like […]

LBS joins Dementia Action Alliance

The Lewy Body Society has become a member of the Dementia Action Alliance, a network of around 170 organisations, from all sectors, dedicated to transforming the quality of life of people affected by dementia. All members of the Alliance have to write a pledge that states what action they will be taking between now and […]

Dementia Carers’ Voices – a call for stories

Dementia campaigner, Tommy Whitelaw, is collecting letters from carers about what life is like caring for someone with dementia – the struggles and the joys – which he draws from when raising awareness through the media, talking with politicians and seeking to change NHS services and support for the better. You can follow Tommy’s campaign […]

High interest in LBS at UK Dementia Congress

The Lewy Body Society stand attracted a lot of interest at this year’s UK Dementia Congress (30 October-1 November) at the Brighton Hilton Metropole, with a steady stream of visitors from leaders and opinion-formers in the sector to students of dementia studies. For some, this was their first contact with the society or even the […]

Barefoot triumph for Nicola Bellenger in Great South Run

Our warmest thanks to Nicola Bellenger for her fantastic Great South Run on behalf of the Lewy Body Society and in honour of her Nan who has dementia with Lewy bodies. After the race, Nicola posted on our Facebook page: “I completed the GSR today, barefoot in 2 hours 1 minute! I’ve actually done it! […]

LBS News release on investment of £50M to improve dementia care environments

Dementia diagnosis is key to making most of millions Friday 26 October 2012 For immediate release The Lewy Body Society, the only European charity focused exclusively on Lewy body dementias, the second most common type of dementia, warmly welcomes the Health Minister’s pledge to invest £50M on dementia care and urges him to ensure understanding […]

Call to action on hospital care

A new focus on the care of people with dementia in hospitals gives LBS an opportunity to raise concerns that are specific to people affected by Lewy body dementias. We’d love to hear from you if you have experiences you would like to share about acute hospital care. We took part in a meeting on […]

Call to action on hospital care

A new focus on the care of people with dementia in hospitals gives LBS an opportunity to raise concerns that are specific to people affected by Lewy body dementias. We’d love to hear from you if you have experiences you would like to share about acute hospital care. We took part in a meeting on […]

LBS response to NICE consultation on Dementia Care Standard

LBS has made a joint response with Parkinson’s UK to the National Institute for Health and Clinical Excellence’s consultation on a draft quality standardfor the social care of people with dementia and their carers. Click here to read our response. We would like to thank all the people who gave us comments to include in […]