Chris Leek , has joined Ken Clasper, Conor McGinn MP and Les Magee to become our fourth Ambassador. We are delighted that he has agreed to take on the role. Chris has first-hand experience of Lewy body dementia as his father is living with Lewy body dementia. Chris Leek completed the Enduroman Arch 2 Arc […]
One of the Lewy Body Society’s main aims is to support research into Lewy body dementia, to help improve diagnosis and treatment of the disease in future. A new clinical trial started in 2018 at a number of different hospitals and research centres across the UK. If you or someone you know would like to […]
We would like to invite you to take part in a new research study hosted by a research group based at Cardiff University. Since 2004 we have been interviewing people and collecting blood samples to try to understand more about how certain genes affect the likelihood of developing dementia. So far over 5000 people have […]
Improving diagnosis and management in dementia with Lewy bodies using the CPFT Research Database (CRATE) We would like to draw your attention to the following study, funded by the Alzheimer’s Society, which proposes to use anonymised clinical data from people with dementia who were seen within Cambridgeshire and Peterborough NHS Foundation Trust (CPFT) from 2005 […]
Are you or someone you care for living in East Anglia with a diagnosis of Lewy body dementia? Living with Lewy body dementia: Stories of Everyday Experience is a research study aimed at finding out your experiences of day to day living with Lewy body, so it can inform future nursing practices and care. Taking […]
Our first grant for 2018/19 is for a project which aims to identify ‘repurposed’ treatments for Lewy body dementia Project name Drug Repurposing for Dementia with Lewy Bodies Project team Led by Professor John T O’Brien, Department of Psychiatry, University of Cambridge (read Prof O’Brien’s biography here) Aim of the study To identify any existing drugs, […]
You are encouraged to take part in a research study conducted by University College London (UCL). The study aims to explore the opinions and knowledge of those in heritable disease communities regarding genome editing and its applications. This research is in the form of an online survey. The survey will explore the different aspects of […]
Are you thinking of booking a holiday, short break in the UK or abroad, or just a day trip? If you book through Not Just Travel – Near and Far then not only will you get access to great deals and expert advice, but the Lewy Body Society will receive a donation too. It comes at no […]
Les Magee, a renowned Northern Ireland-based musician, has joined Ken Clasper and Conor McGinn MP and become our third Ambassador. We have worked with Les for a number of years and are delighted that she has agreed to take on the role. Although extremely busy singing and playing the harp and piano at weddings, Les […]
New address and phone number for the Lewy Body Society From Monday 23rd July 2018 the Lewy Body Society will have a new postal address and telephone number. Our new contact details are: The Lewy Body Society Unity House Westwood Park Wigan WN3 4HE Telephone number: 01942 914000 Email address: info@lewybody.org If you are a […]
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